Thursday, April 17, 2008

Thursday Evening Update

The team of doctors met with Laura and Jon tonight and prepared them that the next step is most likely going to be a heart transplant.

The decision will be made some time in the next 12-96 hours. The bottom left side of Lindsay's heart is not functioning properly and they are calling the episode on Tuesday cardiac arrest.

In one sense Lindsay may tell them what the next step will or will not be depending on how she responds. She is on a priority list for a heart which means it could be anywhere from 24 hours to six months. The family and team would be making the decision to proceed if this would be a viable outcome for Lindsay. This is a very difficult time for everyone. For the past 48 hours the verse that Lord has been giving me is from Psalm 61:2 "From the end of the earth I call to YOU when my heart is faint; lead me to the Rock that is higher than I.

Please pray specifically that the Lord will give all the family peace and a good night of rest tonight.

Pray for wisdom for the doctors and personnel that need to make the decisions.

I have been praying that if God would heal Lindsay to the amazement of the doctors, nurses and others who have attending her and observing this situation. Ultimately our pray is for GOD'S WILL for Lindsay Bear. She belongs to Him.

Your notes are an encouragement, so please ... keep 'em coming.

Thursday Update

I am sorry for the delay in getting you information on the blog, but I was hoping to have some more encouraging news for you.

Here is what we know at this point:

1. The left side of the heart is not functioning properly. They tried weaning her slightly off the heart and lung machine so that she would do more of the work and she wasn't ready for that.

2. They still have her in the "paralytic" state and want to keep her resting. They are turning her, and she has opened her eyes.

3. The EEG studies will be done later this afternoon which will show if there is any brain concerns or if a seizure might have been the cause of the attack she had on Tuesday.

4. The two options at this point unless God intervenes and heals her would be for additional open heart surgery or a heart transplant. They have not ruled out the heart transplant which was already an option if they did not do the surgery and allow things to run its course.

Obviously both options weigh heavy on every one's hearts and minds. So how can you pray:

1. Pray for continued wisdom for the doctors and nurses.

2. Pray that if she will need the transplant that God will provide a heart as quickly as possible. The nurses have indicated that paperwork might already be in process just in case.

3. Pray for peace for Laura and Jon. As each day drags on the waiting gets harder and every one's patience tends to wane.

4. Praise the Lord that the Devon House opened up for housing from Friday night until the 30th. That will take much pressure off everyone.

5. Praise the Lord for the thousands who are praying! It is amazing to hear reports of friends everywhere who are lifting the Groen and Welte families up before the throne of grace.

Again, please be sure and leave a comment on the blog even if it is just a sentence. It is an encouragement. We love you all.

If you'd like to send a card to Lindsay, you can send it to her c/o:
Boston Children's Hospital
300 Longwood Avenue
Boston, MA 02115

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:Dover Baptist Church151 Washington Street Dover, NH 03820 Attn. Pastor Ken Monihan. Please make checks payable to Dover Baptist Church and write Jon and Laura's name at the bottom of the check.

Wednesday, April 16, 2008

Wednesday Evening Update

This afternoon they began the neurological tests on Lindsay. She will be monitored for 24 hours to determine if there was any brain issues or if this episode was caused by a seizure.

Pray that everyone will get a good night's rest.

Laura wanted me to let you know that visiting hours are 12-8 Eight South. Thanks again for your prayers.

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:Dover Baptist Church151 Washington Street Dover, NH 03820 Attn. Pastor Ken Monihan

Tuesday Morning Update

Thanks for your prayers. I cannot express enough how much it means to know we have a family that now stretches around the globe of people who are praying.

Lindsay had a restful night. We are thankful that Heather was her nurse again in CICU. She is super.

The surgeon was pretty frank with Laura and Jon today and there are several things that they are facing at the moment.

> They did test on the liver and kidneys and they are functioning properly. All of her other blood work is good as well.

> They will be doing a neurological study to make sure that there is no problem with the brain.

> There is the possibility that she might even need additional heart surgery, and he even mentioned the possibility of a heart transplant. I think he is trying to explore all of the options with them.

> They are having to move one of the heart lines to the other leg because of possible circulation problems.

Obviously Laura and Jon have a lot on their plate right now. The plan today is that they will leave Lindsay rest and then do some additional testing tomorrow.

I know that as the family read the blogs they are an encouragement. The tears obviously come too! I will keep the blog updated as often as I receive information.

We are IN HIS GRIP!

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:

Dover Baptist Church
151 Washington Street
Dover, NH 03820

Attn. Pastor Ken Monihan

Tuesday, April 15, 2008

Tuesday Evening Update

Lindsay is still be monitored very closely and being cared for by the amazing staff of Children's Hospital. Obviously she is in critical condition and we are having to take things moment by moment. Let me offer some specific ways for you to pray:

1. As you pray for Laura, please pray that she will be able to not dwell on the image of Lindsay collapsing in her arms. She told me earlier that she keeps rehashing that picture and beating herself up that she missed something. Pray that God will continue to sustain her as she still has not had time to even process all that has occured with her miscarriage.

2. Pray for Tanner and his adjustment to this situation. For a three year old, he has been a real trooper in being at the hospital nine days. The kids are trying to pray through how to bring some normalcy to his life at this point, and certainly they don't want him to think he is an intrusion.

3. Pray for Jon that God will give him strength. He has done so well in even sleeping in the room at nights. He hates hospitals as much as I do, so I know that this is majorly out of his comfort zone.

4. Pray for Jan, Phyllis and Warren. It is hard on grandparents!!! Pray for the Lord to sustain Jan as she is feeling emotionally spent right now but wants to be there for the kids.

Warren asked the doctors if this was a short-term set-back. The doctor said she could be looking at several days or maybe even a week on the heart and lung machine, and additional weeks in the hospital.

A number of folks have asked about financial concerns. We believe that they are going to be adequately covered, however, if Jon isn't able to work, he does not get compensated. Their church took an offering for them on the weekend which will be a big help.

Tomorrow I am planning to ask the Keswick Board if it would be possible to set up a fund so that folks can contribute through America's KESWICK. I will put the information on the blog some time tomorrow.

This morning in my Freedom Fighter blog I journaled from STREAMS IN THE DESERT on the topic of TRUST ... "The strength of our faith is in direct proportion to our level of belief that God will do exactly what HE has promised. Faith has nothing to do with feelings, impressions, outward appearances, nor the probability or improbability of an event. If we try to couple these things with faith, we are no longer resting on the Word of God, because faith is not dependent on them. Faith rests on the pure Word of God alone. And when we take Him at HIS Word, our hearts are at peace." The hymnwriter said, "Tis so sweet to trust in Jesus! Just to take HIM at HIS WORD. Just to rest upon HIS promise! Just to know, 'Thus saith the Lord!'"

We don't understand! We can't trace His plan. But WHAT we can do at this point, moment by moment, is to trust HIS heart.

Your prayers and notes mean more than you will EVER know. Please keep them coming.

We are IN HIS GRIP!

URGENT PRAYER REQUEST

Lindsay went into cardiac distress this afternoon and has been taken back to Cardiac ICU. They had to open up her chest and put her own the heart and lung machine. Obviously this has been a very traumatic couple of hours for Laura, Jon, Tanner and Jan. We don't have a clue what the next steps are at this point, but we do trust in our Sovereign God who knows what is happening. I will be keeping the block updated as I have information.

Tuesday Noon

Lindsay has turned the corner. The meds are working. She is off her oxygen and she made a trip by wagon down to the main lobby to see the fish and a huge ball display! Praise the Lord. Jan will be sending me pictures later.

Thought this would be an encouragement to all of our faithful praying family and friends.

Monday, April 14, 2008

Update Monday Evening

Lindsay had an ok day. She was fairly restless and seems to have had it with everything. The continue to regulate the heart meds and are praying that the diarrhea under control.

Laura and Jon want to thank Susie Randolph for the cookies she made for them and the nurses. The nurses really appreciated and enjoyed the cookies.

Pray too that Jan will be able to extend the housing until the weekend. They are running out of options.

Monday Morning Update

Lindsay continues to improve. The heart rhythm issue is being controlled by medication which they will increase slightly today. She is still battling diarrhea, so pray that they will be able to get that under control. Thankfully Lindsay is able to drink the unflavored "pedialite."

Keep the prayers and encouragement notes coming! We appreciate them.

Sunday, April 13, 2008

Blog Information

Some folks are having difficulty using the blog. You need to post your comment, type in the "Word verification" and then click on the "Anonymous" button then PUBLISH POST. If you have a problem, please send an email to Bill at keswickexe@akmail.org.

Saturday, April 12, 2008

Saturday Afternoon Update

Lindsay DID NOT go back to ICU last night. She is still struggling with a rapid heart rate. She seems to be improving, but is not showing much emotion. She is beginning to eat more and the kids were able to take her out of the room in a "wagon!"

Don't stop praying and keep the blog comments coming. They will be a big encouragement to Laura, Jon and Tanner.

Thanks.

Friday, April 11, 2008

Friday Evening Update

Earlier today Lindsay was moved to the Cardiac Step Down Wing. They have not been able to get the heart rate to the level they desire, so they are moving her back to ICU. As of 6:00 PM they were still waiting for bed.

They also attempted to put her on liquids and lite foods, but she has struggled with diarrhea all day. Pray that they will be able to get this under control.

Zach and me are back in Whiting, so we will be able to update the blog more often throughout the day.

Thanks for standing with us.

Thursday, April 10, 2008

Thursday evening update

Well believe it or not it is 11:21 PM and I am on a date with Lindsay!
My family are still a bit in shock, but I am spending the night with her in ICU! Don't faint! I am in my right mind (well, I think I am ...) Today was an incredible day of progress. Tonight they took out the breathing tubes and she is just on a little oxygen. Because she is getting a little more active, they upgraded her to a big girl bed. By morning, she will be pretty much awake and able to start eating, which almost doesn't seem possible.

We cannot thank you enough for the prayer support and encouragement that you have provided. The blog comments are a great encouragement to our kids.

Zach and I will be heading back to NJ tomorrow with Josh, Jenny and Samuel. Jan will stay on to encourage the kids her and help in whatever way she can when Lindsay is released. God has been so good to us.

God is still working miracles!

Yesterday we were still trying to find housing for Laura, Jon, Tanner and Jan for this weekend and next week while Lindsay is still in the hospital. We had tried several places at the direction of the social worker. Jan had called Devon Nicole House where we had previously made application and they were still filled. She mentioned to the lady on the phone that it was a good thing that they were filled and helping so many people. The lady wished they had a bigger place so that they could help us. Later in the afternoon, Caroline, the social worker, found Jan and told her that Devon House had called her and told her that a local hotel within several blocks had offered a room for $30 a night from Friday to next Wednesday. When Jan went to finalize it with the Children's services department, the lady there said we were very lucky that it doesn't happen very often. Jan told the lady that it wasn't luck but that it was a miracle and that we had thousands of people praying. One of the ladies jumped and gave Jan a hug. She was a Christian and said that the other ladies needed to hear that. Praise the Lord, He is still working miracles. Your prayers are still working. :)

Update for April 10

Well, things have been happening quite fast around here so that is the reason for the relay in writing. Just as we were ready to update, something else would happen and change. So here we go.

They have removed both chest tubes, catheter is out and the neck pick line is out! The first to come out was the monitor line that was right at the heart. That was the toughest one but the Lord kept it easy with no bad results. They are lowering her bed to wake her up and Laura and Jon will get to hold her! We praise the Lord!

Julie is now on her way home (a little teary). Pray for safety as she drives back to New Jersey. Thanks again Garrett for letting her come. Thanks too, to Emma and Ethan for letting their mom come to see Lindsay. It was great to have all the Welte kids together. Josh, Jenny and Sam will be here until tomorrow. Pray for safety as they drive back to Maryland tomorrow.

We cannot thank you enough for your prayers and loving thoughts that have poured out over these last several days. God is so good.

Pray for Bill and Zach as they will also be leaving tomorrow to return to NJ. Jan will stay on for the duration of the hospital stay and then to NH to help with getting Lindsay back into the daily routine.

Wednesday, April 9, 2008

Update 4/9/08 10:00 PM

Praise the Lord for the great progress that Lindsay has made today. As of this evening she is completely off the pacemaker and the medications to regulate the heartbeat have been greatly reduced. She is out of the "paralytic" sleep and beginning to become a little more responsive.

The surgeon is pleased with what he observed as the day progressed. She will remain in Cardiac ICU for at least another two-three days.

Our daughter, Julie, arrived this morning. Thanks, Garrett, for letting her come and for taking care of the kids. Laura was really surprised to see her. Pray for Julie as she heads up some time tomorrow afternoon.

Amy Richardson, daughter of Karen and Robby Richardson, took Zach and Tanner out on the town this afternoon and they had a great time getting away from the hospital. Thanks, Amy!

Josh, Jenny and Sam arrived after 6 and really shocked Laura! They will be staying until Friday and Zach and Dad will follow them back home. Thanks, Josh and Jenny for making the trip.

Grandma (Phyllis) Groen is spending the night with Lindsay so that Laura and Jon can get a good night of rest (if that is possible with Julie and Laura being in the same room).

Your prayers and blog comments have been a HUGE BLESSING!

Update -- April 9, 2008 4:45 PM

Praise the Lord for major improvement this afternoon. Laura and Jon were able to assist the nurse in bathing Lindsay. She has been responding to the stimulation. Sometime in the next couple of hours they will reduce the meds which will mean she will be waking up slowly.

At this point they do not believe additional surgery is necessary. The leaking has been greatly reduced. She is still being assisted by the pacemaker and that should come off as she stabilizes.

Baring no complications, she will be in ICU for at least three more days and then will move to cardiac step down.

Another major answer to prayer is that Jon and Laura were able to secure a hotel room closeby for $30.00 a night. They have the room from Friday - Tuesday. The hospital social worker said this rate doesn't come about very often.

We cannot thank you enough for your prayers. We know people are praying round the clock from different locations around the world. It is very humbling.

Update -- April 9, 2008

Our families want you to know that we sense God’s peace in an amazing way even through the tears. They are doing an echo-cardio right now which will determine the next steps. Dr. Mayer is thinking that he may need to do surgery later on today. The good news is that her bp and heart rhythms appear to be stabilizing. We can sense the strain on both Jon and Laura at this point, so continue to undergird them with your prayers
We will keep you posted throughout the day. We love you all and thank you for standing with us at the throne of grace.

Tuesday, April 8, 2008

Tuesday Night Update

Lindsay had a rough time shortly after 5:00 PM. They had an issue with regulating the heart rhythms and blood pressure. They have changed the medications and will keep her on the pacemaker through the evening and then will make a determination in the morning as to the next steps.

As we said previously, the first 48 hours are the most difficult so we are praying that by tomorrow afternoon she will turn the corner.

Jan and I are very proud out Zach and how he was such a help. He made it back numerous times to spend time with Lindsay, and when the crisis hit, was helpful in relaying information to the family.

Jon and Laura are spending the night at the hospital tonight. The Lord is sustaining everyone.

Thank you again for your prayers. The blog comments are much appreciated.

Tuesday, April 8, 2008

We apologize for the delay in getting out information. It was a busy night. Granny stayed at the hospital with Lindsay while Laura went back to the hotel for some much needed sleep.

Lindsay had a few episodes last night where her heart rate went up and her blood pressure dropped. With that, many people descended on the room and were working to correct the situation. This is common in post-op heart patients but a little scary for Granny at first. Once she knew what was going on it was better. Lindsay has been put in a sleep mode and her body cooled so that the heart and everything related can begin to heal and get back to a normal rhythm. This will also keep her from moving around. Yesterday she became very agitated when she knew Laura and Jon and family were in the room. She wanted "uppy", "Mommy," "juice". They need for her to be still and thus the "sleep" mode. There are technical terms but we can't pronounce them nor spell them. :)

Today they told us would probably be the worst for us. They will need to flush her body of fluids as it is retaining them. We may see a difference in swelling. As of 1 pm today she will only be out of surgery, 24 hrs. The nurses have said that we need to be patient and after the 48 hr period, things will look very different. Lindsay does respond to Laura, Jon and Tanner's voices and touch, as well as the rest of the family. We will need to keep this to a minimal today.

Continue to pray for Lindsay and Laura, Jon and Tanner and the Groens and Weltes. We can feel your prayers at work. We love you all very much. Thank you for your loving comments. We have all felt encouraged, loved and prayed for by them.

Keswick staff, the waiting room boxes have been a big hit. The notes, cards and letters were of great encouragement to all. Thanks again. :)