Can't believe that this is the 95th update since putting up the blog, and that we are fast approaching 17,000 visits to the site. Amazing!
It has been a relatively quiet day ... but here is where we are:
The result of backing Lindsay off of ECMO was that her heart cannot function on it's own. There was also some kidney issues with not being on the machine.
The infection and lung are better today. There is talk that we might be looking at the Berlin Heart at the end of the week or early next week.
Her "output" considers to be going well.
Do we appreciate your prayer support and encouragement?
Lindsay Alice Groen June 14, 2006 -- May 16, 2008
Monday, May 5, 2008
Monday Morning Update
Good morning. I have been waiting to post this morning until we have some more concrete answers for you, so this is what we have so far:
1. The chest xray shows improvement in the left lung, but a spot on the right lung.
2. No further word on the infection.
3. They had to put a stitch in the left hand where the IV site was bleeding. That seems to be better.
4. They started to back her off of ECMO, but had a challenge with regulating her fluids. They have put her back on full ECMO.
The verses from the Lord for this morning: "Oh, fear the Lord, you His saints! There is no want to those who fear Him. The young lions lack and suffer hunger; but those who seek the Lord shall not lack any good thing. No good thing will He withhold from those who walk uprightly. O Lord of hosts, blessed is the man who trusts in You! I want to be without care. Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God ... Why are you so fearful? How is it that you have no faith? HAVE FAITH IN GOD! (Psalm 34:9-10; Psalm 84:11-12; Mark 4:40; Mark 11:22)
Keep your posts coming! And thank you for your prayers. We love and appreciate you.
1. The chest xray shows improvement in the left lung, but a spot on the right lung.
2. No further word on the infection.
3. They had to put a stitch in the left hand where the IV site was bleeding. That seems to be better.
4. They started to back her off of ECMO, but had a challenge with regulating her fluids. They have put her back on full ECMO.
The verses from the Lord for this morning: "Oh, fear the Lord, you His saints! There is no want to those who fear Him. The young lions lack and suffer hunger; but those who seek the Lord shall not lack any good thing. No good thing will He withhold from those who walk uprightly. O Lord of hosts, blessed is the man who trusts in You! I want to be without care. Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God ... Why are you so fearful? How is it that you have no faith? HAVE FAITH IN GOD! (Psalm 34:9-10; Psalm 84:11-12; Mark 4:40; Mark 11:22)
Keep your posts coming! And thank you for your prayers. We love and appreciate you.
Sunday, May 4, 2008
Sunday evening update
It has been a relatively quiet day. They did back Lindsay off the paralytic this afternoon and she continues to respond.
There are several major prayer requests tonight:
1. There is bleeding again at the left hand IV site. They have called into someone from surgical to see what can be done.
2. The infection is a little better and its eradication is the key to better options.
3. The big news is that starting within the hour, they are going to start backing off ECMO and with medication support, see what Lindsay's heart can do. Needless to say, the kids are a wee bit apprehensive about this step. Pray for peace, and most of all, that this will reveal that Lindsay's OWN heart can function.
One of our friends, Dr. Judy Jalovick, encouraged me to check out the lyrics to a song from one of the latest Gaither Vocal Band CD's. The song is entitled, THROUGH ...
“When I saw what lay before me,
Lord, I cried, what will you do?
I thought He would just remove it.
But, He gently led me through.
Without fire, there’s no refining,
without pain, no release,
without flood, there’s no rescue,
without testing, no belief.
Through the fire, through the flood,
through the water, through the blood…
Through the dry and barren places,
through life’s dense and maddening mazes,
through the pain, and through the glory…
Through we’ll always tell the story,
of the God whose power and mercy,
will not fail…to take us…through.”
I think that sums it all up for tonight ... Lord, please take Lindsay through!
There are several major prayer requests tonight:
1. There is bleeding again at the left hand IV site. They have called into someone from surgical to see what can be done.
2. The infection is a little better and its eradication is the key to better options.
3. The big news is that starting within the hour, they are going to start backing off ECMO and with medication support, see what Lindsay's heart can do. Needless to say, the kids are a wee bit apprehensive about this step. Pray for peace, and most of all, that this will reveal that Lindsay's OWN heart can function.
One of our friends, Dr. Judy Jalovick, encouraged me to check out the lyrics to a song from one of the latest Gaither Vocal Band CD's. The song is entitled, THROUGH ...
“When I saw what lay before me,
Lord, I cried, what will you do?
I thought He would just remove it.
But, He gently led me through.
Without fire, there’s no refining,
without pain, no release,
without flood, there’s no rescue,
without testing, no belief.
Through the fire, through the flood,
through the water, through the blood…
Through the dry and barren places,
through life’s dense and maddening mazes,
through the pain, and through the glory…
Through we’ll always tell the story,
of the God whose power and mercy,
will not fail…to take us…through.”
I think that sums it all up for tonight ... Lord, please take Lindsay through!
Sunday Morning Update
Good morning! Trust that you will be blessed today on this Lord's Day. Here is some additional good news:
1. Lindsay had a good night. They were very pleased with how she eliminated fluid during the night, and even backed down what they were trying to take off
2. Her chest xray show more improvement. They are talking about trying to back down the ventilator this morning to see if they can put her back on the smaller unit. This will give them the ability to turn her more often.
The head of the CICIU met with the kids last night and reiterated that she is not out of the woods yet, but was also encouraged by the way Lindsay was handling things. The two biggest issues are the need to get her off the ECMO machine and clearing up the infection. As you pray, these are the two biggest challenges that she will face. She cannot get the Berlin heart or the heart transplant with an infection.
This morning in my quiet time, here are several verses that were in the DAILY LIGHT (http://www.gnpcb.org/esv/devotions/daily.light/):
Behold, the Lord's hand is not shortend, that it cannot save; nor His ear heavy that it cannot hear. In the day I cried out, You answered me, and made me bold with strength in my soul. Ah, Lord God! Behold you have made the heavens and the earth by YOUR great power and outstretched arm. There is nothing too hard for You. He delivered us from so great a death, and does deliver us; in whom we trust that He will still deliver us. This sickness is not unto death, but for the GLORY OF GOD that the Son of God may be glorified through it. Did I not say to you that if you would believe you would see the glory of God?
Thanks again for writing to the kids. They are encouraged by your love and support, and most of all, your prayers.
1. Lindsay had a good night. They were very pleased with how she eliminated fluid during the night, and even backed down what they were trying to take off
2. Her chest xray show more improvement. They are talking about trying to back down the ventilator this morning to see if they can put her back on the smaller unit. This will give them the ability to turn her more often.
The head of the CICIU met with the kids last night and reiterated that she is not out of the woods yet, but was also encouraged by the way Lindsay was handling things. The two biggest issues are the need to get her off the ECMO machine and clearing up the infection. As you pray, these are the two biggest challenges that she will face. She cannot get the Berlin heart or the heart transplant with an infection.
This morning in my quiet time, here are several verses that were in the DAILY LIGHT (http://www.gnpcb.org/esv/devotions/daily.light/):
Behold, the Lord's hand is not shortend, that it cannot save; nor His ear heavy that it cannot hear. In the day I cried out, You answered me, and made me bold with strength in my soul. Ah, Lord God! Behold you have made the heavens and the earth by YOUR great power and outstretched arm. There is nothing too hard for You. He delivered us from so great a death, and does deliver us; in whom we trust that He will still deliver us. This sickness is not unto death, but for the GLORY OF GOD that the Son of God may be glorified through it. Did I not say to you that if you would believe you would see the glory of God?
Thanks again for writing to the kids. They are encouraged by your love and support, and most of all, your prayers.
Saturday, May 3, 2008
Saturday Update
Well here is some good news ...
1. They did a wake test and Lindsay mouthed "Mommy" and was able to squeeze Laura and Jon's hands!!!
2. She is eliminating more fluid!!!
3. The chest xray showed considerable improvement. The nurse said that if her left lung was a 1 today, it is a 6 tonight.
Laura and Jan said the nurses are pretty excited to say the least ... Needless to say, we are "bubbling over with hope" tonight.
God is answering your prayers. Thanks for bombarding the kids with notes today. That has been a HUGE encouragement!!!
1. They did a wake test and Lindsay mouthed "Mommy" and was able to squeeze Laura and Jon's hands!!!
2. She is eliminating more fluid!!!
3. The chest xray showed considerable improvement. The nurse said that if her left lung was a 1 today, it is a 6 tonight.
Laura and Jan said the nurses are pretty excited to say the least ... Needless to say, we are "bubbling over with hope" tonight.
God is answering your prayers. Thanks for bombarding the kids with notes today. That has been a HUGE encouragement!!!
Saturday afternoon Update
"May the God of your hope so fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you may abound and be overflowing (bubbling over) with hope." Romans 15:13 (Amplified Bible)
This verse has been coming at us from many different geographic locations. The bubbling over hope that God gives is not understandable by the world. To them it is denial or repressed fear. But for those of us who know the GOD OF HOPE -- know that it is unexplainable, but ever so REAL!
Dr. Mayer shared with the kids today that Lindsay is not out of the woods, but he is not HOPE-less!!!
1. The lung is slight better than yesterday and they are continuing to take steps to suction off the mucous.
2. The infection is improving.
3. She is eliminating fluids better (that was for you, Laurel!) but they are tweaking her meds so that she will eliminate not only what she takes in, but fluid in the body.
4. We are still waiting for a more definitive answer about the mitral valve, but there is some talk that the leak is more severe because of being on ECMO.
5. They are adjusting the paralytic meds because she is becoming a little more restless. She still has plenty of fight in her and wants to see her Mommy and Daddy and Tanner!
6. Please continue to pray about the housing situation. They have the room and Devon and Nicole House until next Thursday.
I want to thank you for writing on the blog today. Don't just visist! Write! It is a HUGE encouragement.
If you cannot write on the blog, you can send me an email at keswickexe@akmail.org and I will post your entry.
This verse has been coming at us from many different geographic locations. The bubbling over hope that God gives is not understandable by the world. To them it is denial or repressed fear. But for those of us who know the GOD OF HOPE -- know that it is unexplainable, but ever so REAL!
Dr. Mayer shared with the kids today that Lindsay is not out of the woods, but he is not HOPE-less!!!
1. The lung is slight better than yesterday and they are continuing to take steps to suction off the mucous.
2. The infection is improving.
3. She is eliminating fluids better (that was for you, Laurel!) but they are tweaking her meds so that she will eliminate not only what she takes in, but fluid in the body.
4. We are still waiting for a more definitive answer about the mitral valve, but there is some talk that the leak is more severe because of being on ECMO.
5. They are adjusting the paralytic meds because she is becoming a little more restless. She still has plenty of fight in her and wants to see her Mommy and Daddy and Tanner!
6. Please continue to pray about the housing situation. They have the room and Devon and Nicole House until next Thursday.
I want to thank you for writing on the blog today. Don't just visist! Write! It is a HUGE encouragement.
If you cannot write on the blog, you can send me an email at keswickexe@akmail.org and I will post your entry.
Early Saturday Morning Update
Good morning ... I have been up for most of the night praying for Laura and Jon, and of course, Lindsay Bear.
Last night one of the doctors came in to meet with the kids and basically dumped a whole lot of bad news on them. The news seemed to be inconsistent with the reports that they had been receiving throughout the day, and of course, was very grim and confusing.
The difficult part was that the doctor was implying that they were not comprehending the severity of Lindsay's situation and even the fact that they had faith that things could turn around.
If what this doctor said is indeed true, the picture he painted is very grim. The lung is in very serious condition, which means that they could also be facing a lung transplant. The mitral valve seems to be worse not better. In other words, if his report is true -- we are at 11:59.
Jon and Laura know that Lindsay's life is hanging in the balances. They know that every day that she is still here, that this is a gift from God. I do not believe that they are hanging on to false hope -- they are trusting in the sovereignty of God, and waiting on Him to do what is best for Lindsay.
My prayer throughout the night is that God would bring CLARITY to the situation. Pray that Dr. Mayer or Dr. Emani will either confirm the report or that be able to put things into perspective.
Pray for God's peace to fill Laura and Jon's heart today. Pray that He will replace doubt and fear with faith and hope! Laura and Jon "May the God of your hope so fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you may abound and be overflowing (bubbling over) with hope." Romans 15:13 (Amplified Bible)
We have said it many times in the past several weeks ... we are humbled and overwhelmed with the outpouring of love, encouragement, and most of all, your prayers for Lindsay and our kids. People all around the globe have been talking to God about this precious little girl. We thank you from the bottom of our hearts.
If you sign on the blog today, please don't just read the blog -- stop and take a minute to even write a line to the kids. I think your encouragement will be very important for them today.
Last night one of the doctors came in to meet with the kids and basically dumped a whole lot of bad news on them. The news seemed to be inconsistent with the reports that they had been receiving throughout the day, and of course, was very grim and confusing.
The difficult part was that the doctor was implying that they were not comprehending the severity of Lindsay's situation and even the fact that they had faith that things could turn around.
If what this doctor said is indeed true, the picture he painted is very grim. The lung is in very serious condition, which means that they could also be facing a lung transplant. The mitral valve seems to be worse not better. In other words, if his report is true -- we are at 11:59.
Jon and Laura know that Lindsay's life is hanging in the balances. They know that every day that she is still here, that this is a gift from God. I do not believe that they are hanging on to false hope -- they are trusting in the sovereignty of God, and waiting on Him to do what is best for Lindsay.
My prayer throughout the night is that God would bring CLARITY to the situation. Pray that Dr. Mayer or Dr. Emani will either confirm the report or that be able to put things into perspective.
Pray for God's peace to fill Laura and Jon's heart today. Pray that He will replace doubt and fear with faith and hope! Laura and Jon "May the God of your hope so fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you may abound and be overflowing (bubbling over) with hope." Romans 15:13 (Amplified Bible)
We have said it many times in the past several weeks ... we are humbled and overwhelmed with the outpouring of love, encouragement, and most of all, your prayers for Lindsay and our kids. People all around the globe have been talking to God about this precious little girl. We thank you from the bottom of our hearts.
If you sign on the blog today, please don't just read the blog -- stop and take a minute to even write a line to the kids. I think your encouragement will be very important for them today.
Friday, May 2, 2008
Friday Night Update
We are in need of everyone to start praying for a few things:
A doctor came in this evening with some news that wasn't very good. At this point I will not tell what exactly it is, as we are hoping that they can call Dr. Mayer and see what he has to say on things. So please be in prayer for some clarity this evening before they head out for the night. We are just wondering how we went from things going so well to things not looking so good.
Also if you could start praying for their housing situation. At this point they have to be out of the DevonNicole House until June.
Keep praying and will update when we have more information
A doctor came in this evening with some news that wasn't very good. At this point I will not tell what exactly it is, as we are hoping that they can call Dr. Mayer and see what he has to say on things. So please be in prayer for some clarity this evening before they head out for the night. We are just wondering how we went from things going so well to things not looking so good.
Also if you could start praying for their housing situation. At this point they have to be out of the DevonNicole House until June.
Keep praying and will update when we have more information
Friday Afternoon Update
Here is the latest on Lindsay:
1. The lung test showed no infection. They believe it is just mucous and did a saline flush. They are going to put her on a larger breathing machine to help with the lungs.
2. They were able to put in an additional line, which could have been risky with the bleeding issues.
3. They are planning to take the chest tubes out which will further help keep the chest area undisturbed.
4. They did an echo cardiogram of the heart and we hope to get the results later on today.
5. They are planning to back ECMO back next week to see what her heart can do.
This is all cool. Keep praying about the infection.
1. The lung test showed no infection. They believe it is just mucous and did a saline flush. They are going to put her on a larger breathing machine to help with the lungs.
2. They were able to put in an additional line, which could have been risky with the bleeding issues.
3. They are planning to take the chest tubes out which will further help keep the chest area undisturbed.
4. They did an echo cardiogram of the heart and we hope to get the results later on today.
5. They are planning to back ECMO back next week to see what her heart can do.
This is all cool. Keep praying about the infection.
Mid-Morning Update
God is answering your prayers.
1. They will be doing the lung test shortly, so please pray that they will be able to figure out why the left lung is not working properly.
2. Dr. Mayer stated again today that if they can get the infection cleared up, it opens up numerous options.
3. Laura and Jan had opportunity to share with one of her doctors about the answer to your prayers about the bleeding stopping last night. He asked them to get on the blog the need to put in another line today. That was cool. We are smiling that the doctors and nurses are asking us to put stuff on the blog! Yeah, God!
On Wednesday night Jan texted me a verse the Lord had given her several weeks ago: "Though it tarries, wait for it ..." Habakuk 2:3. I smiled this morning ... When I opened "My Utmost for His Highest" -- guess what the verse was for today? Coincidence? You will have to decide.
1. They will be doing the lung test shortly, so please pray that they will be able to figure out why the left lung is not working properly.
2. Dr. Mayer stated again today that if they can get the infection cleared up, it opens up numerous options.
3. Laura and Jan had opportunity to share with one of her doctors about the answer to your prayers about the bleeding stopping last night. He asked them to get on the blog the need to put in another line today. That was cool. We are smiling that the doctors and nurses are asking us to put stuff on the blog! Yeah, God!
On Wednesday night Jan texted me a verse the Lord had given her several weeks ago: "Though it tarries, wait for it ..." Habakuk 2:3. I smiled this morning ... When I opened "My Utmost for His Highest" -- guess what the verse was for today? Coincidence? You will have to decide.
Friday Morning Update
Here is some news to bless your heart. We posted the Urgent Prayer Request re: the bleeding at 10:09 PM last night. God answered your prayers! The bleeding stopped.
The night nurse said that it was amazing that at 10:00 PM the bleeding stopped! Praise the Lord.
"It shall come to pass That before they call, I will answer; And while they are still speaking, I will hear." Isaiah 65:24
"Call to ME and I will answer you and show you great and mighty things ..." Jeremiah 33:3
My son-in-law, Garrett, asked me to look up the word miracle. Here is the dictionary definition: an effect or extraordinary event in the physical world that surpasses all known human or natural powers and is ascribed to a supernatural cause.
Thank you for praying that God will wow and amaze the doctors with what HE, and HE alone can do.
Thanks for posting your comments on the blog.
The night nurse said that it was amazing that at 10:00 PM the bleeding stopped! Praise the Lord.
"It shall come to pass That before they call, I will answer; And while they are still speaking, I will hear." Isaiah 65:24
"Call to ME and I will answer you and show you great and mighty things ..." Jeremiah 33:3
My son-in-law, Garrett, asked me to look up the word miracle. Here is the dictionary definition: an effect or extraordinary event in the physical world that surpasses all known human or natural powers and is ascribed to a supernatural cause.
Thank you for praying that God will wow and amaze the doctors with what HE, and HE alone can do.
Thanks for posting your comments on the blog.
Thursday, May 1, 2008
Urgent Thursday night update
Please pray that they will get the bleeding to stop at the IV site. This is a very serious concern.
One item of praise is that she is peeing more! Praise the Lord.
One item of praise is that she is peeing more! Praise the Lord.
Thursday evening Update
Jan just called with several items for prayer:
1. Please pray about the bleeding the IV site in Lindsay's hand.
2. Because of the infection, Lindsay is on the inactive list for a transplant. We need to ask God to take care of the infection.
3. They are doing a test of the lung tomorrow to find out if there is infection in her lung.
4. She is peeing better, but needs to keep it up!
I want to encourage you to pray for wisdom for the doctors. If God can show up for the prophets of Baal -- just think what He can do at Children's Hospital Boston.
There is another way you can help. Brian Bitler, our adopted son, suggested that we start writing to the doctors and let them know that they are being prayed for! I think that is a great idea.
Here are three to start with: Dr. Mayer (Chief Surgeon), Dr. Emani and Dr Brown. You can write them at:
Children's Hospital Boston
Cardiac Intensive Care
8 South
300 Longwood Avenue
Boston, MA 02115
I know that your notes will be encouraging to them.
We storm the gates of heaven together for Lindsay and for her doctors.
Today at our Community Hymnsing, hundreds of our Keswick friends told me how they were praying for Lindsay and Laura and Jon. So many have been on the blog and putting them on their church prayer lists. We patched Laura in by phone so she could thank our friends ... needless to say, there weren't too many dry eyes.
God bless you.
1. Please pray about the bleeding the IV site in Lindsay's hand.
2. Because of the infection, Lindsay is on the inactive list for a transplant. We need to ask God to take care of the infection.
3. They are doing a test of the lung tomorrow to find out if there is infection in her lung.
4. She is peeing better, but needs to keep it up!
I want to encourage you to pray for wisdom for the doctors. If God can show up for the prophets of Baal -- just think what He can do at Children's Hospital Boston.
There is another way you can help. Brian Bitler, our adopted son, suggested that we start writing to the doctors and let them know that they are being prayed for! I think that is a great idea.
Here are three to start with: Dr. Mayer (Chief Surgeon), Dr. Emani and Dr Brown. You can write them at:
Children's Hospital Boston
Cardiac Intensive Care
8 South
300 Longwood Avenue
Boston, MA 02115
I know that your notes will be encouraging to them.
We storm the gates of heaven together for Lindsay and for her doctors.
Today at our Community Hymnsing, hundreds of our Keswick friends told me how they were praying for Lindsay and Laura and Jon. So many have been on the blog and putting them on their church prayer lists. We patched Laura in by phone so she could thank our friends ... needless to say, there weren't too many dry eyes.
God bless you.
Prayer Request
Lindsay's left hand has an IV hookup and it is leaking blood. Several attempts have been made to stop it but it is still leaking. Please pray that the Lord will stop it or slow it down. Lindsay's nurse, Moira, is concerned. She suggested we put it out on the blog. God is working. Thanks.
Thursday morning update
Good morning.
This morning there have been several more blood clots. One of them was found leaving the ECMO machine headed back to Lindsay - so praise the Lord that it was caught. Because of the development of clots they are going to have to change something with the way they are giving her blood.
Thanks so much for your prayers. They mean so much. Please continue to pray for the doctors, nurses, and technicians as well as the family. They are doing a great job and need your prayers for strength and wisdom as well.
Wednesday, April 30, 2008
Wednesday Evening Update
This has been a cool day of encouragement. The Lord has given Jon a sense of HIS peace in a very amazing way.
There are two major prayer requests for tonight:
1. Pray that God will heal the infection.
2. Pray that Lindsay will be able to urinate on her own (Someday she will shoot us for putting potty requests about her on the blog!) This will sure help reduce the swelling.
Praise the Lord that the technicians were able to spot a clot in the ECMO tubing and replace the tubing. God has blessed us with many special caregivers.
Here is a picture of two of my favorites ... Heather is on the left, and M
oira (Meow) is on the right! Praise the Lord for these special angels of mercy.
oira (Meow) is on the right! Praise the Lord for these special angels of mercy.Thanks again for your love and prayers. Over 10,000 people have checked out the blog.
Wednesday afternoon update #4
This is Jan coming right from Lindsay Bear's bedside. Bill and Zach are en route to NJ so I am bringing good news and praising God.
Lindsay's nurse, Moira, backed down her medication to see what movements we could get out of her. WOW.....God is awesome! She moved every part she could possibly move. She even opened her eyes slightly as they are still very swollen. They have brought in the CD player and she is right now listening to one of her favorites, Boz the Bear. They gave her some liquid on a pink spongy thing which she wasn't too fond of. (Sorry to all the doctors and nurses about that, but Granny's talk like that.;) She tried to wave bye-bye as Grandma and Grandpa were leaving and raised her hand when Daddy let it go. Lots of tears for JOY as this is another tiny step forward.
We have a long way to go but we are so grateful to God for HIS faithfulness to Lindsay and us. This is a special place and we are thankful that we are here. The doctors, nurses and everyone here at Children's have been wonderful.
Continue to pray for Lindsay's room mates, Elijah, Logan and new one Emma. Laura and Jon have been such encouragers to these families.
Thanks for your prayers and kind thoughts to Bill and I these last couple of days. It was another teary parting again but know this is where God wants me for right now.
I am praising God for all of you and that HE will work His perfect plan in each of your lives. God is daily using Lindsay's precious little life to bless us all. I love you, Lindsay Bear. (Granny)
Lindsay's nurse, Moira, backed down her medication to see what movements we could get out of her. WOW.....God is awesome! She moved every part she could possibly move. She even opened her eyes slightly as they are still very swollen. They have brought in the CD player and she is right now listening to one of her favorites, Boz the Bear. They gave her some liquid on a pink spongy thing which she wasn't too fond of. (Sorry to all the doctors and nurses about that, but Granny's talk like that.;) She tried to wave bye-bye as Grandma and Grandpa were leaving and raised her hand when Daddy let it go. Lots of tears for JOY as this is another tiny step forward.
We have a long way to go but we are so grateful to God for HIS faithfulness to Lindsay and us. This is a special place and we are thankful that we are here. The doctors, nurses and everyone here at Children's have been wonderful.
Continue to pray for Lindsay's room mates, Elijah, Logan and new one Emma. Laura and Jon have been such encouragers to these families.
Thanks for your prayers and kind thoughts to Bill and I these last couple of days. It was another teary parting again but know this is where God wants me for right now.
I am praising God for all of you and that HE will work His perfect plan in each of your lives. God is daily using Lindsay's precious little life to bless us all. I love you, Lindsay Bear. (Granny)
Wednesday morning Update #3
We had an opportunity to talk with Dr. Mayer, and compared to where we were last night, the reality of the verse "weeping endures for the night, but joy comes in the morning ..." was very real.
He said that he was very concerned last night, but was amazed at how she has stabalized throughout the night. The bleeding is under control. ECMO will be doing most of the fluid work today, but they want to begin getting her kidneys to function.
The major prayer for today is that they will be able to get the infection in the chest under control and healed. That will make the whole scenario improve drastically, both with the heart and lungs. Once the infection is taken care of, then she will be a better candidate for the Berlin Heart or a transplant.
Laura reported that Jon had incredible peace last night. Jon told Laura that he didn't care if she lost a foot or even her legs as long as he could bring her home and take care of her.
Thanks for your prayers. Now you all have had three updates this morning!
He said that he was very concerned last night, but was amazed at how she has stabalized throughout the night. The bleeding is under control. ECMO will be doing most of the fluid work today, but they want to begin getting her kidneys to function.
The major prayer for today is that they will be able to get the infection in the chest under control and healed. That will make the whole scenario improve drastically, both with the heart and lungs. Once the infection is taken care of, then she will be a better candidate for the Berlin Heart or a transplant.
Laura reported that Jon had incredible peace last night. Jon told Laura that he didn't care if she lost a foot or even her legs as long as he could bring her home and take care of her.
Thanks for your prayers. Now you all have had three updates this morning!
Wednesday Morning Update #2
After seeing Lindsay this morning I am encouraged. The circulation to the foot seems much improved, her coloring is much better, and Moira, her nurse, was mildly optimistic. We all have our favorite nurses, and Moira ranks up there!!! She is so tender and caring, and I love the way that she talks to Lindsay as she cares for her.
We have not seen the doctors yet, but the bleeding seems to be under control. Pray that she will be able to urinate better. Pray that the infection will continue to be healed. Pray that the bypass will prove to be effective and provide strength and healing to the heart.
We asked if she was still a candidate for a transplant. Moira said that she is still on the list, but that they would not accept one right now because of all she has been through combined with the infection.
I know that the kids will need your continued encouragement today. Pray for Zach and me as we travel back to NJ later this morning. I will update you as I get information.
We have not seen the doctors yet, but the bleeding seems to be under control. Pray that she will be able to urinate better. Pray that the infection will continue to be healed. Pray that the bypass will prove to be effective and provide strength and healing to the heart.
We asked if she was still a candidate for a transplant. Moira said that she is still on the list, but that they would not accept one right now because of all she has been through combined with the infection.
I know that the kids will need your continued encouragement today. Pray for Zach and me as we travel back to NJ later this morning. I will update you as I get information.
Wednesday Morning
Good morning. I was blown away again this morning by the outpouring of love in seeing over 9,000+ visits to the blog and 37 messages last night after the last update.
Laura and Jon were finally able to see Lindsay sometime around 1:30 AM after a long talk with one of the doctors.
Lindsay's situation as of last night is very critical. While the bypass surgery technically was successful, the challenges that are before her HUMAN SPEAKING seem so huge.
The ECMO cannulae's were moved to the groin and neck. During surgery the team felt that this was the only way to go, however, the circulation of the one leg has been compromised, which is of great concern.
The battle she is fighting has only just begun. Coupled with the infection, she has lost a significant amount of blood, and the next several days will be very challenging, as in any major surgery.
From the HUMAN perspective -- the news is overwhelmingly discouraging, but we don't know what God has in store. I don't have my concordance with me, but two verses that appeared on the blog are -- "Weeping endures for the night, but joy comes in the morning!" "The steadfast love of the Lord never ceases ...His mercies are new EVERY MORNING."
To say that we were not all emotionally impacted by the news would be misleading. The news was certainly not what we had hoped for BUT we know that God is at work, and while we do not yet understand or can discern HIS plan and will at this point, we do have confidence that HE IS IN CONTROL.
I believe that I can speak for everyone in that we desire HIS WILL for Lindsay's life. Please pray for strength for Laura and Jon and for all the doctors and nurses tending to her.
Thanks, Warren, for spending the night with Lindsay.
Laura and Jon were finally able to see Lindsay sometime around 1:30 AM after a long talk with one of the doctors.
Lindsay's situation as of last night is very critical. While the bypass surgery technically was successful, the challenges that are before her HUMAN SPEAKING seem so huge.
The ECMO cannulae's were moved to the groin and neck. During surgery the team felt that this was the only way to go, however, the circulation of the one leg has been compromised, which is of great concern.
The battle she is fighting has only just begun. Coupled with the infection, she has lost a significant amount of blood, and the next several days will be very challenging, as in any major surgery.
From the HUMAN perspective -- the news is overwhelmingly discouraging, but we don't know what God has in store. I don't have my concordance with me, but two verses that appeared on the blog are -- "Weeping endures for the night, but joy comes in the morning!" "The steadfast love of the Lord never ceases ...His mercies are new EVERY MORNING."
To say that we were not all emotionally impacted by the news would be misleading. The news was certainly not what we had hoped for BUT we know that God is at work, and while we do not yet understand or can discern HIS plan and will at this point, we do have confidence that HE IS IN CONTROL.
I believe that I can speak for everyone in that we desire HIS WILL for Lindsay's life. Please pray for strength for Laura and Jon and for all the doctors and nurses tending to her.
Thanks, Warren, for spending the night with Lindsay.
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