Sunday Morning

Good morning. Lindsay had a very peaceful night
and apparently had a better night with her "output." Her sugarh are still high, so pray that they will be able to get them under control.

I was up a good bit of the night praying for Laura, Jon and the kids last night, and thought maybe you'd all like to see the whole family. Thousands of you have seen the pictures of Lindsay, but now you have a picture of Jon, Laura and Tanner.

Today is Mother's Day and I wanted to tell Laura how much I love her and how proud we are of her. It is hard to believe that this year she will be 30! Where does the time go? We have watched her grow into a woman who loves the Lord and loves her family. She is a woman who is trusting God and who is not afraid to go to the Lord with boldness and confidence. Laura, I know that Nan in particular, would be so proud of your walk with God. I know that is a direct answer to her prayer for all of her grandkids.

"Charm is deceitful and beauty is vain but a woman who fears the Lord, she shall be praised. Give her the product of her hands, and let her works praise her in the gates." Proverbs 30:30-31

Laura, today is your day, baby! You are a woman who fears the Lord, and your family is the evidence of how God is using you to bring glory to Him. We love you.

I would also like to tell Jan and Phyllis -- Happy Mother's Day. Our kids are what they are because of the examples of godly living that has been modeled for them by both of you. "Your children rise up and bless both of you, and your husbands also, and we praise you, saying, 'Many daughters have done nobly, but Phyllis and Jan, you excell them all." (Proverbs 30:28-29)

Peace

Laura, Tanner and I would like to thank you all from the bottom of our hearts. Your prayers and notes of encouragement have been a big blessing the last few weeks. We have really enjoyed reading cards, letters and the comments here on the blog. We are so grateful for our huge network of family, friends and many who we don't even know but hope to meeet some day- who are interceding on our and Lindsay's behalf.
The power of prayer is amazing, we can attest to this! Laura and I have felt the peace and comfort of the Holy Spirit on a daily basis. Peace that surpasses all comprehension, and a comfort that could only come from the One who created us and loves us more than we love our own precious children. We place Lindsay before God every day and trust him to do what he knows is best. We boldly ask him to heal Lindsay and restore her little body to health, but pray that His will be done, and that He continue to be our refuge and strength, the everlasting arms beneath the entire family.
We covet your continued prayer for Lindsay bear, that His will be done and that He will be glorified through her
Daddy's heart aches for you Lindsay -sleep tight honey bear! Daddy loves you!

Saturday Evening Update

Thank you for your prayers today. The nurses have asked that we pray that Lindsay's sugar levels will come down and that her kidneys will begin to eliminate more fluid.

Please be praying for Laura tomorrow with it being Mother's Day.

Have a blessed night.

Late Saturday Afternoon Update

The kids met with the head of the Cardiology department and he is still holding on to the premise that Lindsay is very critical, but not hopeless. There was talk about putting a stomach tube in to help with drainage from the stomach, but he was not recommending that because of the risk of infection. Should the kidneys become and issue, they could do dialysis right off of the ECMO machine. They are also still contemplating moving forward with the Berline Heart.

We asked for clarity, and God has been answering those prayers. We will keep you posted.

Saturday Noon Update

Here is the latest update:


The doctors have called for a family meeting that will take place some time in the next several hours. From what I can determine, Lindsay's situation continues to deteriorate will new complications. The doctors and nurses are really scrambling to figure out what to do ... they are all emotionally wrapped up in Lindsay's life. Her heart has become theirs.

My heart has been torn as well as your -- God please heal her! I don't know the mind of God for Lindsay. I know what I want -- I want to have her on my lap right now so that I can do "this little piggy" and sing "I love you a bushel and a peck." I cannot even begin to fathom what Jon and Laura are going through right now. My heart aches for them.

I do know that I continue to cry out to God for HIS WILL. After all, He knows what it is like to give up a Son. Would you please join us in praying for GOD'S WILL for Lindsay's life, for wisdom for the doctors and nurses, and the peace, comfort and strength for Jon and Laura.

Our ride has been a roller coaster. But you have stood with us in with your prayers and tears. And we thank you from the bottom of our hearts.

Saturday Morning

Praise the Lord that Lindsay had a stable night. Today His mercies are NEW -- Great is HIS faithfulness.

We are grateful for your encouragement and prayers.

Friday Evening Update

There has been a lot of activity this afternoon to bring stability to Lindsay's situation. The assessment given is that what she is experiencing is a result on 25+ of being on the ECMO machine. There is still no definitive word on the infection, however they are giving her nebulizer treatments and antibiotics to treat the lungs.

Tonight Lindsay's output was improving and that was encouraging. All three doctors have assured the kids that they will do everything the can. All three have indicated that there is still HOPE.

Dr. Brown shared with the family that your cards are arriving, and that they are a huge encouragement!!! Thanks for writing to Dr Mayer, Dr. Emani and Dr. Brown. If you haven't, you can still do so by writing to them at:
Children's Hospital Boston
300 Longwood Avenue
Boston, MA 02115.

I would also like to encourage you to write to Lindsay's nurse, Heather. I don't know her last name but you can send it to the CICU 8 East.

Thanks for partnering with us.

Friday Afternoon Update

Knowing that hundreds of you are checking the blog on a regular basis throughout the day, I wanted to write and give you some additional information.

Please pray for clarity and an understanding of what is really taking place in Lindsay's body. There seems to be some confusion about the infection, what kind it is, it's location, and the next steps. Her "output" has slowed done and her lungs are obviously a concern. The kids have an meeting this afternoon with the head of the Cardiology Department. Hopefully we will get some more definitive information at that time.

They are trying to adjust medications where possible and are backing down the paralytic since she has not "awake-awake" in two days.

Laura shared that Jon cried this morning and said, "I just want to pick her up and hold her." Jon, I want you to know how very proud we are of you, and for the way that you had literally stood with Lindsay during the past 30+ days. Jon and I share the same "passion" for hospitals, so I probably appreciate more than anyone how stretching this has been. You are a good Daddy, Jonathan Groen.

Laura, it's hard for me to even type this without bawling. Mom and I are so proud of you and the strength that you have demonstrated not only in caring for Lindsay every day since her surgery, but being able to put aside your own grief from the miscarriage so that you can give "Bear" all of Mommy.

Warren & Phyllis have driven to and from NH just about every day to support the kids and their "Little Pink!" I know that their trip away right now is hard on them.

Jan has been there living out of a suitcase since the day of surgery. Zach and I miss her big time, but know that right now she is needed in MA to help with Tanner and Laura and Jon.

Our daughter Julie has taken on Zach's homeschooling responsibility to free Jan up. Julie, Mom and I are very proud of you ...

Well enough of the mush -- thanks to all of our family and friends who have stood by our family during these difficult days.

And most of all, thank You Lord for the way you are taking us THROUGH.

Friday Morning Update

We are at 11:59! These next several hours are going to be very critical in determining the next steps for Lindsay. She had an issue during the night with low blood pressures and it would appear that there is another infection. The lungs are a concern and we think there now may be an issue with the kidneys.

"When you pass through the waters, I will be with you; And through the rivers they will not overflow you. When you walk through the fire, you will not be scorched, nor will the flame burn you." Isaiah 43:2

Please uphold Laura, Jon, Tanner, Jan, and Warren and Phyllis who are away.

Early Thursday Evening Update

We are urging you to continue to pray this evening for the healing of Lindsay's lung and the ability for her to urinate as much as possible. Pray that God will bring clarity and peace to Jon, Laura, Tanner and Jan as they spend these long days at Lindsay's bedside. Pray that God will bring encouragement to them in a very special way that will only be traceable back to HIM and HIM alone.

Update.....pray for output

Lindsay was doing really well in the "urine output" department earlier, but has really slowed down. Please pray that she begins to "pee" again. Very important. Nothing else new. Thanks for praying.

Thursday Noon Update

More good news. Lindsay's lungs are greatly improved!!! Her volume is up and the doctors are pleased. In fact, they are meeting to talk about putting her back on the active transplant list!!!

The was an infection that grew out in the culture, but they believe it is in the chest tube. Pray for clarity!!!

All in all -- we are thankful for this encouraging report. The Lord gave me a few nuggets from Psalm 106 this morning: Vs. 8 -- Nevertheless He saved them for the sake of HIS name that He might make HIS POWER known. -- vs. 6 Then they believed HIS words; they sang HIS praises.

Our prayer is that WHATEVER He wants to do through Lindsay's life will be for the sake of HIS name and that people would see HIS POWER!

Thanks for praying. Thanks for writing on the blog. Thanks for writing to the doctors. We are over 20,000 hits to the blog.

Wednesday Evening Update

Dr. Mayer was in and pleased with Lindsay's progress. She is still doing well on the smaller ventilator. Please continue to pray for the on-going healing on the lungs.

Laura and Jon have also asked prayer for Jon's parents who are leaving tomorrow for upstate New York and then on to Missouri. It was very hard for them to leave the hospital. Please keep Warren and Phyllis in your prayers.

Laura asked prayer for baby Elijah who is being airlifted tonight to a hospital in Mississippi. He is seven months old and weighs 7lbs. His parents have to fly out commercial and won't get home until tomorrow. Laura and Jon have been witnessing to the family.

Thanks for your prayers.

Wednesday Afternoon Update

Lindsay is now on the smaller vent. They have also given medication into her lungs to help open them up. Please pray that this will keep the lungs working properly. The infection is under control and she will continue to be on antibiotics for quite awhile. All her other organs are working well. She still needs some days of resting, adjusting levels and taking off fluids. We will keep you posted. Again, thanks for your prayers, blogs and cards. They continue to be a great source of encouragement to all or us.

Wednesday Morning Update

Good morning. I am sitting in a room with 1100 ladies who are currently attending the Spring Ladies Day at America's KESWICK with my good friend, Liz Curtis Higgs. Many of these ladies have come to tell me that they are praying for Lindsay, Laura, Jon and Tanner. What an encouragement it has been to meet prayer partners face to face!

Dr. Emani encouraged us to get word of the blog to have folks pray specifically for Lindsay's lungs! In order to proceed with the artificial heart, the lungs must be clear! Please get the word out and let's storm heaven's gates with our prayers. If he can clear up MERSA, he can clear up her lungs.

Thanks from the bottom of our hearts!

Tuesday evening update

The nurses have all asked to put on the blog to pray for Lindsay's lungs. They were a little mucousy today, and they will not be able to put in the Berlin Heart until the lungs are cleared up.

So please pray specifically for the lungs!

PS -- Your cards are arriving!!!

Boots are made for walkin' and Wheels in Motion

Lindsay just got fitted for orthopedic boots to help her feet and calves since she has been lying in bed for a month. Check them out.

Dr Mayer was in to tell us the wheels are in motion for the Berlin Heart. Several prayer requests for you to take before the throne.

1. Lindsay's lungs need to be in better shape in order to switch over to the smaller vent and then to take over with little or no assistance after the Berlin is put in. This is the most importatnt right now.

2. After the Berlin arrived several weeks ago, it was shipped back since the infection was so severe. It needs to arrive back again.

3. Keeping her urine output is very important. She has been doing that on her own today but that needs to continue. 4. The rest of her organs need to stay in good shape before surgery.

Tuesday morning update

PROGRESS! ANSWERS TO PRAYER! ENCOURAGEMENT!

Well family and friends, here is some great news. "Output" is still good. The infection appears to be under control. The transplant team is meeting today to discuss moving forward with the Berlin heart!!! Yippee!!

PERSPECTIVE!

The good news is that the Berlin heart appears to be becoming a reality. The surgery comes with major risks as it is another open heart surgery. Bleeding can be an issue. She will need to remain on ECMO for a period after surgery to support the lungs.

All that being said -- I believe we have many reasons to rejoice. Tomorrow it will be a month since the first surgery! Hard to believe! What a journey we have been on together. How we praise God for your standing, sitting, kneeling, in prayer to our great and powerful GOD!

I will keep you posted throughout the day.

Monday Evening Update

This was a quiet day -- I guess that is a good thing.
Please pray that Lindsay's ...

"output" will continue to improve,
the infection will be gone
the lung will continue to improve

that God will give divine wisdom to the doctors who have so many decisions to make

housing for Thursday and beyond

Bottom line: thanks for praying. We love you.

Monday Afternoon Update

Can't believe that this is the 95th update since putting up the blog, and that we are fast approaching 17,000 visits to the site. Amazing!

It has been a relatively quiet day ... but here is where we are:

The result of backing Lindsay off of ECMO was that her heart cannot function on it's own. There was also some kidney issues with not being on the machine.

The infection and lung are better today. There is talk that we might be looking at the Berlin Heart at the end of the week or early next week.

Her "output" considers to be going well.

Do we appreciate your prayer support and encouragement?

Monday Morning Update

Good morning. I have been waiting to post this morning until we have some more concrete answers for you, so this is what we have so far:

1. The chest xray shows improvement in the left lung, but a spot on the right lung.

2. No further word on the infection.

3. They had to put a stitch in the left hand where the IV site was bleeding. That seems to be better.

4. They started to back her off of ECMO, but had a challenge with regulating her fluids. They have put her back on full ECMO.

The verses from the Lord for this morning: "Oh, fear the Lord, you His saints! There is no want to those who fear Him. The young lions lack and suffer hunger; but those who seek the Lord shall not lack any good thing. No good thing will He withhold from those who walk uprightly. O Lord of hosts, blessed is the man who trusts in You! I want to be without care. Be anxious for nothing, but in everything by prayer and supplication, with thanksgiving, let your requests be made known to God ... Why are you so fearful? How is it that you have no faith? HAVE FAITH IN GOD! (Psalm 34:9-10; Psalm 84:11-12; Mark 4:40; Mark 11:22)

Keep your posts coming! And thank you for your prayers. We love and appreciate you.

Sunday evening update

It has been a relatively quiet day. They did back Lindsay off the paralytic this afternoon and she continues to respond.

There are several major prayer requests tonight:

1. There is bleeding again at the left hand IV site. They have called into someone from surgical to see what can be done.

2. The infection is a little better and its eradication is the key to better options.

3. The big news is that starting within the hour, they are going to start backing off ECMO and with medication support, see what Lindsay's heart can do. Needless to say, the kids are a wee bit apprehensive about this step. Pray for peace, and most of all, that this will reveal that Lindsay's OWN heart can function.

One of our friends, Dr. Judy Jalovick, encouraged me to check out the lyrics to a song from one of the latest Gaither Vocal Band CD's. The song is entitled, THROUGH ...
“When I saw what lay before me,
Lord, I cried, what will you do?
I thought He would just remove it.
But, He gently led me through.
Without fire, there’s no refining,
without pain, no release,
without flood, there’s no rescue,
without testing, no belief.
Through the fire, through the flood,
through the water, through the blood…
Through the dry and barren places,
through life’s dense and maddening mazes,
through the pain, and through the glory…
Through we’ll always tell the story,
of the God whose power and mercy,
will not fail…to take us…through.”

I think that sums it all up for tonight ... Lord, please take Lindsay through!

Sunday Morning Update

Good morning! Trust that you will be blessed today on this Lord's Day. Here is some additional good news:

1. Lindsay had a good night. They were very pleased with how she eliminated fluid during the night, and even backed down what they were trying to take off

2. Her chest xray show more improvement. They are talking about trying to back down the ventilator this morning to see if they can put her back on the smaller unit. This will give them the ability to turn her more often.

The head of the CICIU met with the kids last night and reiterated that she is not out of the woods yet, but was also encouraged by the way Lindsay was handling things. The two biggest issues are the need to get her off the ECMO machine and clearing up the infection. As you pray, these are the two biggest challenges that she will face. She cannot get the Berlin heart or the heart transplant with an infection.

This morning in my quiet time, here are several verses that were in the DAILY LIGHT (http://www.gnpcb.org/esv/devotions/daily.light/):

Behold, the Lord's hand is not shortend, that it cannot save; nor His ear heavy that it cannot hear. In the day I cried out, You answered me, and made me bold with strength in my soul. Ah, Lord God! Behold you have made the heavens and the earth by YOUR great power and outstretched arm. There is nothing too hard for You. He delivered us from so great a death, and does deliver us; in whom we trust that He will still deliver us. This sickness is not unto death, but for the GLORY OF GOD that the Son of God may be glorified through it. Did I not say to you that if you would believe you would see the glory of God?

Thanks again for writing to the kids. They are encouraged by your love and support, and most of all, your prayers.

Saturday Update

Well here is some good news ...

1. They did a wake test and Lindsay mouthed "Mommy" and was able to squeeze Laura and Jon's hands!!!

2. She is eliminating more fluid!!!

3. The chest xray showed considerable improvement. The nurse said that if her left lung was a 1 today, it is a 6 tonight.

Laura and Jan said the nurses are pretty excited to say the least ... Needless to say, we are "bubbling over with hope" tonight.

God is answering your prayers. Thanks for bombarding the kids with notes today. That has been a HUGE encouragement!!!

Saturday afternoon Update

"May the God of your hope so fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you may abound and be overflowing (bubbling over) with hope." Romans 15:13 (Amplified Bible)

This verse has been coming at us from many different geographic locations. The bubbling over hope that God gives is not understandable by the world. To them it is denial or repressed fear. But for those of us who know the GOD OF HOPE -- know that it is unexplainable, but ever so REAL!

Dr. Mayer shared with the kids today that Lindsay is not out of the woods, but he is not HOPE-less!!!

1. The lung is slight better than yesterday and they are continuing to take steps to suction off the mucous.

2. The infection is improving.

3. She is eliminating fluids better (that was for you, Laurel!) but they are tweaking her meds so that she will eliminate not only what she takes in, but fluid in the body.

4. We are still waiting for a more definitive answer about the mitral valve, but there is some talk that the leak is more severe because of being on ECMO.

5. They are adjusting the paralytic meds because she is becoming a little more restless. She still has plenty of fight in her and wants to see her Mommy and Daddy and Tanner!

6. Please continue to pray about the housing situation. They have the room and Devon and Nicole House until next Thursday.

I want to thank you for writing on the blog today. Don't just visist! Write! It is a HUGE encouragement.

If you cannot write on the blog, you can send me an email at keswickexe@akmail.org and I will post your entry.

Early Saturday Morning Update

Good morning ... I have been up for most of the night praying for Laura and Jon, and of course, Lindsay Bear.

Last night one of the doctors came in to meet with the kids and basically dumped a whole lot of bad news on them. The news seemed to be inconsistent with the reports that they had been receiving throughout the day, and of course, was very grim and confusing.

The difficult part was that the doctor was implying that they were not comprehending the severity of Lindsay's situation and even the fact that they had faith that things could turn around.

If what this doctor said is indeed true, the picture he painted is very grim. The lung is in very serious condition, which means that they could also be facing a lung transplant. The mitral valve seems to be worse not better. In other words, if his report is true -- we are at 11:59.

Jon and Laura know that Lindsay's life is hanging in the balances. They know that every day that she is still here, that this is a gift from God. I do not believe that they are hanging on to false hope -- they are trusting in the sovereignty of God, and waiting on Him to do what is best for Lindsay.

My prayer throughout the night is that God would bring CLARITY to the situation. Pray that Dr. Mayer or Dr. Emani will either confirm the report or that be able to put things into perspective.

Pray for God's peace to fill Laura and Jon's heart today. Pray that He will replace doubt and fear with faith and hope! Laura and Jon "May the God of your hope so fill you with all joy and peace in believing [through the experience of your faith] that by the power of the Holy Spirit you may abound and be overflowing (bubbling over) with hope." Romans 15:13 (Amplified Bible)

We have said it many times in the past several weeks ... we are humbled and overwhelmed with the outpouring of love, encouragement, and most of all, your prayers for Lindsay and our kids. People all around the globe have been talking to God about this precious little girl. We thank you from the bottom of our hearts.

If you sign on the blog today, please don't just read the blog -- stop and take a minute to even write a line to the kids. I think your encouragement will be very important for them today.

Friday Night Update

We are in need of everyone to start praying for a few things:

A doctor came in this evening with some news that wasn't very good. At this point I will not tell what exactly it is, as we are hoping that they can call Dr. Mayer and see what he has to say on things. So please be in prayer for some clarity this evening before they head out for the night. We are just wondering how we went from things going so well to things not looking so good.

Also if you could start praying for their housing situation. At this point they have to be out of the DevonNicole House until June.

Keep praying and will update when we have more information

Friday Afternoon Update

Here is the latest on Lindsay:

1. The lung test showed no infection. They believe it is just mucous and did a saline flush. They are going to put her on a larger breathing machine to help with the lungs.

2. They were able to put in an additional line, which could have been risky with the bleeding issues.

3. They are planning to take the chest tubes out which will further help keep the chest area undisturbed.

4. They did an echo cardiogram of the heart and we hope to get the results later on today.

5. They are planning to back ECMO back next week to see what her heart can do.

This is all cool. Keep praying about the infection.

Mid-Morning Update

God is answering your prayers.

1. They will be doing the lung test shortly, so please pray that they will be able to figure out why the left lung is not working properly.

2. Dr. Mayer stated again today that if they can get the infection cleared up, it opens up numerous options.

3. Laura and Jan had opportunity to share with one of her doctors about the answer to your prayers about the bleeding stopping last night. He asked them to get on the blog the need to put in another line today. That was cool. We are smiling that the doctors and nurses are asking us to put stuff on the blog! Yeah, God!

On Wednesday night Jan texted me a verse the Lord had given her several weeks ago: "Though it tarries, wait for it ..." Habakuk 2:3. I smiled this morning ... When I opened "My Utmost for His Highest" -- guess what the verse was for today? Coincidence? You will have to decide.

Friday Morning Update

Here is some news to bless your heart. We posted the Urgent Prayer Request re: the bleeding at 10:09 PM last night. God answered your prayers! The bleeding stopped.

The night nurse said that it was amazing that at 10:00 PM the bleeding stopped! Praise the Lord.

"It shall come to pass That before they call, I will answer; And while they are still speaking, I will hear." Isaiah 65:24

"Call to ME and I will answer you and show you great and mighty things ..." Jeremiah 33:3

My son-in-law, Garrett, asked me to look up the word miracle. Here is the dictionary definition: an effect or extraordinary event in the physical world that surpasses all known human or natural powers and is ascribed to a supernatural cause.

Thank you for praying that God will wow and amaze the doctors with what HE, and HE alone can do.

Thanks for posting your comments on the blog.

Urgent Thursday night update

Please pray that they will get the bleeding to stop at the IV site. This is a very serious concern.

One item of praise is that she is peeing more! Praise the Lord.

Thursday evening Update

Jan just called with several items for prayer:

1. Please pray about the bleeding the IV site in Lindsay's hand.
2. Because of the infection, Lindsay is on the inactive list for a transplant. We need to ask God to take care of the infection.
3. They are doing a test of the lung tomorrow to find out if there is infection in her lung.
4. She is peeing better, but needs to keep it up!

I want to encourage you to pray for wisdom for the doctors. If God can show up for the prophets of Baal -- just think what He can do at Children's Hospital Boston.

There is another way you can help. Brian Bitler, our adopted son, suggested that we start writing to the doctors and let them know that they are being prayed for! I think that is a great idea.

Here are three to start with: Dr. Mayer (Chief Surgeon), Dr. Emani and Dr Brown. You can write them at:

Children's Hospital Boston
Cardiac Intensive Care
8 South
300 Longwood Avenue
Boston, MA 02115

I know that your notes will be encouraging to them.

We storm the gates of heaven together for Lindsay and for her doctors.

Today at our Community Hymnsing, hundreds of our Keswick friends told me how they were praying for Lindsay and Laura and Jon. So many have been on the blog and putting them on their church prayer lists. We patched Laura in by phone so she could thank our friends ... needless to say, there weren't too many dry eyes.

God bless you.

Prayer Request

Lindsay's left hand has an IV hookup and it is leaking blood. Several attempts have been made to stop it but it is still leaking. Please pray that the Lord will stop it or slow it down. Lindsay's nurse, Moira, is concerned. She suggested we put it out on the blog. God is working. Thanks.

Thursday morning update

Good morning.

This morning there have been several more blood clots.  One of them was found leaving the ECMO machine headed back to Lindsay - so praise the Lord that it was caught.  Because of the development of clots they are going to have to change something with the way they are giving her blood.

Thanks so much for your prayers.  They mean so much.  Please continue to pray for the doctors, nurses, and technicians as well as the family.  They are doing a great job and need your prayers for strength and wisdom as well.

Wednesday Evening Update

This has been a cool day of encouragement. The Lord has given Jon a sense of HIS peace in a very amazing way.

There are two major prayer requests for tonight:

1. Pray that God will heal the infection.

2. Pray that Lindsay will be able to urinate on her own (Someday she will shoot us for putting potty requests about her on the blog!) This will sure help reduce the swelling.

Praise the Lord that the technicians were able to spot a clot in the ECMO tubing and replace the tubing. God has blessed us with many special caregivers.

Here is a picture of two of my favorites ... Heather is on the left, and Moira (Meow) is on the right! Praise the Lord for these special angels of mercy.

Thanks again for your love and prayers. Over 10,000 people have checked out the blog.

Wednesday afternoon update #4

This is Jan coming right from Lindsay Bear's bedside. Bill and Zach are en route to NJ so I am bringing good news and praising God.
Lindsay's nurse, Moira, backed down her medication to see what movements we could get out of her. WOW.....God is awesome! She moved every part she could possibly move. She even opened her eyes slightly as they are still very swollen. They have brought in the CD player and she is right now listening to one of her favorites, Boz the Bear. They gave her some liquid on a pink spongy thing which she wasn't too fond of. (Sorry to all the doctors and nurses about that, but Granny's talk like that.;) She tried to wave bye-bye as Grandma and Grandpa were leaving and raised her hand when Daddy let it go. Lots of tears for JOY as this is another tiny step forward.
We have a long way to go but we are so grateful to God for HIS faithfulness to Lindsay and us. This is a special place and we are thankful that we are here. The doctors, nurses and everyone here at Children's have been wonderful.
Continue to pray for Lindsay's room mates, Elijah, Logan and new one Emma. Laura and Jon have been such encouragers to these families.
Thanks for your prayers and kind thoughts to Bill and I these last couple of days. It was another teary parting again but know this is where God wants me for right now.
I am praising God for all of you and that HE will work His perfect plan in each of your lives. God is daily using Lindsay's precious little life to bless us all. I love you, Lindsay Bear. (Granny)

Wednesday morning Update #3

We had an opportunity to talk with Dr. Mayer, and compared to where we were last night, the reality of the verse "weeping endures for the night, but joy comes in the morning ..." was very real.

He said that he was very concerned last night, but was amazed at how she has stabalized throughout the night. The bleeding is under control. ECMO will be doing most of the fluid work today, but they want to begin getting her kidneys to function.

The major prayer for today is that they will be able to get the infection in the chest under control and healed. That will make the whole scenario improve drastically, both with the heart and lungs. Once the infection is taken care of, then she will be a better candidate for the Berlin Heart or a transplant.

Laura reported that Jon had incredible peace last night. Jon told Laura that he didn't care if she lost a foot or even her legs as long as he could bring her home and take care of her.

Thanks for your prayers. Now you all have had three updates this morning!

Wednesday Morning Update #2

After seeing Lindsay this morning I am encouraged. The circulation to the foot seems much improved, her coloring is much better, and Moira, her nurse, was mildly optimistic. We all have our favorite nurses, and Moira ranks up there!!! She is so tender and caring, and I love the way that she talks to Lindsay as she cares for her.

We have not seen the doctors yet, but the bleeding seems to be under control. Pray that she will be able to urinate better. Pray that the infection will continue to be healed. Pray that the bypass will prove to be effective and provide strength and healing to the heart.

We asked if she was still a candidate for a transplant. Moira said that she is still on the list, but that they would not accept one right now because of all she has been through combined with the infection.

I know that the kids will need your continued encouragement today. Pray for Zach and me as we travel back to NJ later this morning. I will update you as I get information.

Wednesday Morning

Good morning. I was blown away again this morning by the outpouring of love in seeing over 9,000+ visits to the blog and 37 messages last night after the last update.

Laura and Jon were finally able to see Lindsay sometime around 1:30 AM after a long talk with one of the doctors.

Lindsay's situation as of last night is very critical. While the bypass surgery technically was successful, the challenges that are before her HUMAN SPEAKING seem so huge.

The ECMO cannulae's were moved to the groin and neck. During surgery the team felt that this was the only way to go, however, the circulation of the one leg has been compromised, which is of great concern.

The battle she is fighting has only just begun. Coupled with the infection, she has lost a significant amount of blood, and the next several days will be very challenging, as in any major surgery.

From the HUMAN perspective -- the news is overwhelmingly discouraging, but we don't know what God has in store. I don't have my concordance with me, but two verses that appeared on the blog are -- "Weeping endures for the night, but joy comes in the morning!" "The steadfast love of the Lord never ceases ...His mercies are new EVERY MORNING."

To say that we were not all emotionally impacted by the news would be misleading. The news was certainly not what we had hoped for BUT we know that God is at work, and while we do not yet understand or can discern HIS plan and will at this point, we do have confidence that HE IS IN CONTROL.

I believe that I can speak for everyone in that we desire HIS WILL for Lindsay's life. Please pray for strength for Laura and Jon and for all the doctors and nurses tending to her.

Thanks, Warren, for spending the night with Lindsay.

Tuesday Evening Update

Lindsay is out of surgery. She is in very critical condition and has lost a significant amount of blood. They were able to do the artery bypass but did not do anything additional with the mitral valve. The "wow" in this would be if the heart would regain its function. Dr. Mayer and his team did an amazing job and we need to pray for strength for them as well as the rest of the team that ministered to Lindsay.

It will be another hour or so until the kids will get to see her. PLEASE PRAY THAT THE LORD WILL STOP THE BLEEDING to the amazement of the doctors. They have closed the chest to hopefully help deal with the infection. It has been a very long day for everyone. Please pray for the kids as they process the news which is obviously not what we were all hoping for at the moment. God is still in control and HE can still WOW us all.

Thank you from the bottom of hearts for praying and supporting the family with your prayers.

Tuesday Evening Update

We have no news to report as of yet. As soon as we get a report I will get information out on the blog.

Thanks to the hundreds of you who have signed in today to check the blog. Please know how much Laura, Jon, Tanner, Phyllis, Warren, Jan, Zach and me appreciate your love and concern. We are trusting in our great God.

Tuesday Afternoon Update

Lindsay is now in surgery! Laura and Jon had us all come in Lindsay's cubicle to pray with over her. It was a very teary time, especially hearing Laura confidently and victoriously intercede on behalf of her daughter.

Please pray for the doctors and nurses who will be attending to her during the surgery. We are trusting the Lord for a miracle! Three verses that keep coming to us from all over the world are Philippians 4:6-7, Deut. 31:8 and Romans 15:13.

Thank you again for your prayers and support.

Tuesday morning update

Well we all had the surprise of our life when Brian Bitler, Julie and Ethan walked in the waiting room! We were all so happy to see them, and I know that it was a shot in the arm for Laura.

Dr. Mayer had them raise her bed with several more mattresses to help with getting the fluid levels under control. We will have to take a picture as her nurse, Moira, said she looks like the "princess and the pea." Already it has been helpful in draining fluid.

From what we have heard, surgery is scheduled for 1:30 PM. What a thrill to know that people all over the world will join us at the throne of grace on behalf of Lindsay and the team of nurses and doctors who will be attending to her. However, isn't it cool to know that Dr. Mayer's hands will be guided and directed by the GREAT Physician.

We love you all. We will update you as we get information.

Tuesday Morning Update

Good morning. Today is the day of Lindsay's surgery. We don't have a definite time yet, but believe it will be some time after 12:00 noon. As soon as we have a definite time, we will post it on the blog.

Please be praying for the team of doctors and nurses who will be ministering to her in the OR. Pray for Dr. Mayer who is the head surgeon.

Two things that blessed me last night:

1. I finally had the privilege of meeting the nurse who saved Lindsay's life. We refer to her as our "angel of mercy." We thought you would be blessed, too, by meeting Julia. Thanks, Julia! We love you.

2. I was also so moved last night to be in Lindsay's room while Laura prayed over her before we left. It was a very emotional time for me, and I was so thankful to witness the strength that God is giving our kids as they walk through this difficult time. Jon and Laura, we are so proud of you.

Thanks for your prayers and notes. God encouraged my heart this morning. Check out my blog: http://www.americaskeswick.org/freedom/2008/04/he-prayed-earnestly.html

We will keep you posted.

Monday Afternoon Update

Here is the latest update on Lindsay:

Tomorrow afternoon they are scheduling open heart surgery. Dr. Myer is going to go back in a see if he can further repair the mitral valve or have to replace it. He will also try and do a bypass to hopefully get better blood flow to the heart. The procedure will be 5-6 hours in length and is obviously very risky. Of all the options available, this seems to be the most viable, though he repeatedly said that it is very, very risky.

The infection is still an issue and that is a cause for concern. They are planning to remove the ECMO cannulaes from the heart to either the neck or through the groin. This will enable the chest to have time to heal and rest.

I will let you know the exact time so you can be praying. Pray for the surgical team as they prepare and work through the different scenarios. The seriousness of the situation and the potential outcomes are obviously making it very stressful for Laura and Jon. Thanks for standing with us in prayer.

Monday morning update

Lindsay had a good night and her EKG was better. The plan at the moment is to do another "clean and rinse" this morning and to insert a vent into the heart to help with her pressures. They are getting together the "revascularization" team (hope Donna Bitler is impressed!) to decide when/if they will do the bypass surgery. I will put more pictures on later today for you.

Sunday evening update

Tonite's report was that the surgeon was pleased with Lindsay's numbers and that she was resting very comfortably. We have not receieved any definitive word about the surgery tomorrow, so we will let you know as soon as we get word.

The kids took us to Bertucci's for dinner tonight with my brother and sister-in-law and Warren and Phyllis. It was a nice celebration of our 34th anniversary, but we really missed Lindsay Bear and wished she could have been there.

This is a picture of the ECMO machine (Heart and Lung) which is really important in Lindsay's recovery.

Sunday Afternoon Update

Lindsay's infection is getting better and her numbers are all improving.
We are waiting to hear a confirmation on her bypass surgery tomorrow.
The surgery would be 5-6 hours barring no complications. This does not rule out the possibility of her being able to have the Berlin heart or the transplant, but if it works, could possibly help with her heart.
Shea, the nurse caring for Lindsay today, is on the transplant team, and gave us some good information. Pray for wisdom for the team.

Another baby passed away this afternoon. We were able to get a copy of Marilyn Heavilin's book, ROSES IN DECEMBER into their hands. Pray the Lord will use Marilyn's story to be an encouragement. (Check out Marilyn's website: http://marilynheavilin.com/ to find out more about her story and ministry.)

Thanks for praying.

Sunday morning update

Good morning on this Lord's day. Thank you for your faithfulness in checking the blog. Since last Saturday, there have been 5700+ visitors to Lindsay's blog site. That is so encouraging.

Last night the mood was very somber back in Lindsay's room. She is still fighting the infection in her chest and they were having trouble with fluid build up both in her body and in the left side of the heart. Part of the challenge is that they were removing fluids through ECMO which meant her kidneys were not doing as much of the work. They were trying to increase her blood pressure to jump start her kidneys. They talked about the possibility of going in last night to but in a vent to drain the fluid in the heart.

Can I ask you to join us in praying today that the Lord will give us some encouragement? Please pray for on-going strength for Laura and Jon. We are now coming up to beginning the 4th week. Laura and Jan have not left the hospital since the day of surgery.

Thank you again for the many of you who have prayed and encouraged us. We love you.

Saturday Afternoon Update

Greetings from Children's Hospital Boston. My brother, George, and sister-in-law, Joan, planned a trip up here to see Lindsay, so Zach and I hitched a ride which surprised Jan since tomorrow is our 34th wedding anniversary.

They did another clean and rinse this morning and there is still an infection in the chest. The infection has ruled out using the Berlin heart for the moment, so there is a good possibility that on Monday they may attempt to do the bypass surgery.

It was hard for me to see Lindsay Bear with so many tubes and medications, and to finally see what the ECMO was all about. She has wonderful care here.

I had the opportunity to eaves drop on a conversation that the ECMO technician
(Julie) had with Laura. I was moved to tears to hear the nurse say how she couldn't believe how well Laura and Jon were handling this situation. Laura gave a strong, clear testimony of how God is sustaining them and told her of the thousands of saints praying for Lindsay.

I am guess my prayer request for everyone today is that we would see God so something so extraordinary that the nurses and doctors will be WOWED to pieces!

Thank you for your prayers and support. Keep those notes, cards, and prayers coming. We love you.

Saturday Morning Update

Lindsay had a good night and she is doing better with her fluids. The infections seem to be under control. There is a slight possibility that they will attempt to do the heart bypass surgery on Monday. Please continue to pray for wisdom.

We appreciate you! Thank you for sharing your comments and encouraging the kids.

Friday Afternoon Update

Sorry for the lack of information. Up until about an hour ago, things were quiet. I can't really go into a lot of detail at the moment because we are all trying to sort out all that is happening.

We are asking our prayer partners to mobilize to pray very specifically that God will give HIS wisdom to the doctors. They are at a point of really not knowing what the next step should be. They have discussed various options, but they are really at the place where they don't know what would be best.

From what I can determine, the best case scenario is still for God to provide a heart for Lindsay. I did find out that she can be on the ECMO for up to six weeks, so we are not actually at crunch time, but half way there.

There is still the need to get rid of more fluids which they think they can do with ECMO, an issue with the lung, and getting her sedated enough to relax.

So please pray specifically that the team will be willing to listen to HIS voice. Thanks. Be assured that as soon as I know something, even in the middle of the night, I will post information to keep you up to date.

Friday Morning Update

Good morning. Lindsay had a good night. The blood infection is under control and we are waiting to hear back on the other cultures.

She is becoming more accustomed to the parayltic drugs, so she has become a little more "wiggly" and so they are needing to give her more meds to keep her quiet.

I guess we are at the place where "no news is good news."

There is a big meeting on Monday with the entire team to try and get answers to the next step questions.

Thank you again for praying, and writing on the blog. For the MANY of you who have not yet left a note -- this is a HUGE encouragement to Laura and Jon. Someone this morning said, "With all the people writing, I don't want to be a pest." Pests right now are a lifeline of encouragement. So pester away!!!

Thursday Eveninig Update

"The eyes of all look expectantly to You." Psalm 145:15

That was the first verse I read this morning, and how our great God has been at work as we corporately as a family and the family of God have looked to HIM.

Late this afternoon Laura was given a beeper to keep with her at all times which would notify them that the team received word about a heart.

There was a wee bit of confusion since the report this morning seemed to indicate that we were not at that point.

The team felt that since she had improved (infection) that she should be put back on the priority list in the event this is a viable option.

So how do we pray? Our prayer is that God would make it very CLEAR and PLAIN about the next step. We are praying that if HE is going to heal Lindsay through the heart transplant, that the miracle will be a heart as soon as possbible. However, if God wants to heal the her present heart, we are praying that He would hold off on a heart.

We don't presume to know HIS will, so pray that God will speak to the hearts and minds of the team of doctors and nurses providing her care.

Laura went back to check on her before going to dinner and her nurse said that Lindsay was wiggling around. She told Lindsay that if she could hear her, to open her eyes and she did! Now they have had to increase her medications to keep her sedated, but it is very apparent that Lindsay is in the fight! Praise the Lord.

We will keep you posted as we receive updates. Thank you again for your prayers.

Our dear friends, Robert and Joyce Hayes do a song that is called "When A Whisper is Enough." Well God didn't just whisper to us today -- He shouted! Praise God.

Thanks

How can I (we) say "Thanks" for the things YOU have done for me (Lindsay and us). God is awesome, words cannot express.

Eph. 3:20-21 Now to HIM who IS ABLE to do exceedingly abundantly beyond all that we ask or think, according to the power that works within us, to HIM be the glory in the church and in Christ Jesus to all generations forever and ever. Amen

Words are hard to find, but scripture has become so precious. The Lord has been talking to us every step of the way. Your prayers have been felt by all of us and I believe the nurses and doctors are feeling and seeing it as well.

We are not out of the woods, by far, but the Lord has sent through some rays of sunshine for us to bathe in. Keep praying for Lindsay, Jon, Laura, Tanner, Warren, Phyllis, Bill, and GrannyApple(Jan) as we await the Lord's next step. Pray for all our kids as they are all far away and wait for news hourly. We are humbled by HIS presence here.

As we sing to Lindsay this song, we share it with all of you as well:

We love you a bushel and a peck, a bushel and a peck, and a hug around the neck. A hug around the neck, and a barrel and a heap, and a talkin' in our sleep about you. We are praying for all of you as well.

Continue to pray for Logan (10 mths - 3 surgeries) who is having some difficulties. His parents have become dear friends. Also continue to pray for Lance's parents (who have become dear to us, too)and family as yesterday they had to say goodbye. The Lord has brought these families into our lives for a purpose and pray that they will not see us, but Jesus.

Love to all of you around the world,
Jan for my grandbaby, Lindsay, and all the Groens and Weltes

Thursday Noon Update

Hold on to your seats ...

This morning Lindsay had her procedure which included the rinse and exploration of the mitral valve and some additional tests.

Dr. Emani reported that the mitral valve is now mild-to-moderate, which is a big improvement from SEVERE! He then shared that he is AMAZED at the way her heart is beginning to show signs of getting stronger!!!

There is a concern about the left lung, so pray about that as well as praying for the eradication of the infection. His theory now is that the infection could have caused the cardiac arrest.

Right now he is suggesting that they begin to back done the ECMO to see how much her heart can do. If this continues to improve, his recommendation is that they allow her to regain strength, and move towards doing the coronary bypass down the road and not even consider the Berlin Heart or transplant.

Laura and Jan said he kept using the word AMAZED and said we moved from the valley to the mountain. He was cautious to say we could be back in the valley in an hour, but he was encouraged.

Laura shared with him that her prayer has been that if God was going to heal Lindsay, that it would be to the AMAZEMENT of the the doctors and that they would be blown away. Jan shared that there are 1000's of people praying for Lindsay, but that we were asking everyone to pray for the doctors and nurses too! They said at that point he was very teary-eyed!

We give God the glory for what HE is doing in Lindsay's heart! Thank you for praying. Don't forget to sign your names!!!

Thursday morning update

This morning they are going to go back in to do another "cleaning" of the chest area, and the surgeon is going to check out the progress of the mitral valve surgery and explore some other options with the heart.

From my limited understanding of Jon and Laura's comment about Lindsay's being a "dire" situation, she cannot be on the ECMO machine for an indefinite period of time. Right now the team is thinking through every possible scenario because the clock is ticking.

The Berlin heart cannot become functional until the infection is completely gone. Until the infection is gone she is on the inactive list for a heart transplant. There was some talk about the remote possibility of doing some type of "bypass" surgery, which would obviously be better than a transplant.

This morning as I began my quiet time, I was crying out to the Lord for something fresh and new from His Word. These were the verses that God gave to me:

"The eyes of the ALL look expectantly to you." - Psalm 145:15. There are literally thousands praying for Lindsay from coast to coast as well as places like Tel Aviv, Israel - people we don't even know are praying for her.

"HE gives life, breath and all things. The Lord is good to all, and HIS tender mercies are over all HIS works. Look at the birds of the air, for they neither sow nor reap nor gather into barns; yet your heavenly Father feeds them. The same Lord over all is rich to all who call upon Him. I will lift up my eyes to the hills - from whence comes my help? Behold as the eyes of the servant look to the hand of their masters, as the eyes of a maid to the hand of her mistress, so our eyes look to the Lord our God.

The Lord is a God of justice; blessed are all those who wait for Him. It will be said in that day: 'Behold, this is our God; we have waited for Him, and He will save us. This is the Lord; we have waited for Him; we will rejoice and be glad in His salvation. If we hope for what we do not see, then we eagerly wait for it with perseverance." (Acts 17:25; Psalm 145:9; Matthew 6:26; Romans 10:12; Psalm 121:1; Psalm 123:2; Isaiah 30:18; Isaiah 25:9; Romans 8:25)

I trust this update will be helpful in your praying. Thank you to the hundreds of you checking the blog and meeting the Lord with us at the throne of grace. We are all humbled and amazed at this outpouring of love and concern.

From Boston.........

Tanner checking out Lindsay's Berlin heart, which arrived this morning courtesy of British Airways. Now we need Lindsay's infections to clear up. The doctor called her situation "dire" tonight, so we covet your prayers. We thank you all for the support you have all been this far and wil continue to be.
-Jon, Laura, Tanner & Lindsay.

Wedneday Noon Update

We continue to see progress. They are going to open her chest again and do a "clean and rinse" procedure and make sure there is no spread of infection. They seem to be getting control of the infection and there is no sign of any new infection.

The Berlin Heart as arrived and if they can get rid of the infection, they could hook that up as early as this weekend. Once the infection is under control, she will be placed back on the active list for a heart.

Thank you again for your love, prayers, encouragement, and for checking the blog. Don't forget to sign in and leave a message. If you need help with that, let me know! The kids read every one!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Wednesday Morning Update

Praise the Lord that Lindsay had a good night and there seems to be much improvement. Her kidneys are functioning well and she is eliminating more fluid on her own vs. having the ECMO machine do it. The doctors haven't seen the growth of the infection or any new ones. Praise the Lord.

Please pray for the little guy, Lance (7 years old) who is in the next room. He is not doing well and has no brain activity. The family is facing some major decisions in the next couple of days.

Last night one of Lindsay's nurses wrote on the blog. For some reason I missed the story until last night. This ANGEL was walking by when Lindsay was in distress last Tuesday, and saw the look of panic on Laura's face. She was the one who ran in pushed the alarm and started CPR on Lindsay. God used her to save Lindsay's life.

This morning in my quiet time with the Lord, I was reminded that He is the God who IS -- not just the God who was or will be. Here is what I journaled:

THE GOD WHO ISThis morning I have been overwhelmed with the wonderful reality that we have a God who IS - not just was or will be - but who is ... I am thankful for the verses that leapt off the page of the Word this morning that are in the PRESENT TENSE not just past or future tense. Think about them:

The Lord IS my Shepherd - Psalm 23:1
God IS my refuge and strength - a very PRESENT help in my time of trouble - Psalm 46:1
The Lord IS my rock and my fortress and my deliverer ... Psalm 18:2
The angel of the Lord ENCAMPS all around those who fear Him, and DELIVERS them. - Psalm 34:7
The righteous cry out, and the Lord HEARS them, and DELIVERS them out of all their troubles. - Psalm 34:17
The eternal God IS your refuge, and underneath are the everlasting arms.-
Deut. 33:27
So we may boldly say: "The Lord IS my helper; I will not fear ...Hebrews 3:6
Though I walk in the midst of trouble, you PRESERVE my life. - Psalm138:7

It is good to rehearse God's faithfulness in our lives in the past, but O how comforting and refreshing to know that our God is not just the great I WAS - He is the great I AM! Be comforted and encouraged today in the God who IS! -

Tuesday evening update

Today started out as one of discouragement, but the Lord has given us some hope this evening.

Lindsay's response to the change in ECMO machines has been very favorable, and the increased blood flow is awesome. Her heart did work on it's own, but she needed some medication to control her blood pressure.

The bronchial scope was good and didn't show any major concerns. Praise the Lord.

Please continue to pray for Tanner. Jon and Laura had to sell their calves today because Lindsay cannot be around livestock after the transplant. Tanner and Lindsay became very attached to the calves in the short time that they had them. We still marvel at how well he has done being three and at the hospital all but one or two days.

Pray for a good night's rest for Laura, Jon, Tanner and Jan.

Thanks for all your prayers and words of encouragement.

Late Afternoon Update

Here is the latest ...

The bronchial scope was not going to be done until 3:30 PM. The plan was NOT to change the ECMO tube and put it in the neck, but to put her on a larger ECMO machine which would increase the flow. Putting her on the larger machine would mean that HER heart would have to do the work for six or seven minutes. That would give them some time to evaluate what HER heart can do.

Laura sounded much more upbeat on the phone this afternoon which is an answer to your prayers.

As I hear information, I will get it on the blog. Thanks!

Tuesday Afternoon Update

Here is what I know at this point:

1. They are calling the infection a "fungal" infection and working hard at treating it with the right medications.

2. They are contemplating moving the ECMO tube from the chest to the neck.

3. At 1:00 PM they were do a scope of the lung through the nose to see what was happening in the lungs.

4. The Berlin heart has been shipped, but I am not sure that they can do that procedure until the infection is cleared up.

Jan said that Laura was really discouraged today. I think that is where we all are at the moment. It doesn't change our confidence in our great God, but our "human" side sometimes gets in the way.

I know what a blessing it is for me to see your comments, so know that for the kids, it means so much. I know that hundreds of people are visiting the site. If you haven't left a message, please do so. Type your message and sign your name in with your message and then click the button marked "anonymous."

Mid-morning update

Jan just called and said the infection seems to be worse. They are looking at something with the lung now, so she requested prayer. I will keep you updated as I get information.

Tuesday Morning Update

"But those who wait for the Lord [who expect, look for, and hope in Him] shall change and renew their strength and power; they shall lift up their wings and mount up [close to God] as eagles [mount up to the son]; they shall run and not be weary, they shall walk and not faint, or become tired." Isaiah 40:31 -- The Amplified Bible

This is my prayer for Laura, Jon, Tanner, Warren & Phyllis and Jan for today. I could really sense the weariness in their voices this morning when I called for the update.

Late last night they had to do a procedure to further check out the chest and infection. The doctors called the kids for a consent to proceed and then called back to say that everything went well.

We praise the Lord that Morrah (not sure of the spelling) is her nurse today. She is super and was with Lindsay right after her open heart surgery.

The infection is in her blood and will require stronger antibiotics. The infection is more serious than what they first suspected yesterday. They are also needing to change another one of the tubes today.

Needless to say, the battle is going to be long and intense. Would you join me in praying not just for healing, but for strength for today for the family.

I don't want to sound like a broken record, but please know that your prayers and encouragement on behalf of Lindsay is much appreciated. Thank you!

Monday afternoon update

Lindsay has developed an infection in her chest and is now on antibiotics. This means that she will now have to be on the inactive list for a transplant until the infection clears up. We are not certain how this affects that the Berlin heart. We will keep you updated as we hear information.

Thanks for praying!

Monday morning update

Good morning. Here are several updates for prayer:

1. Lindsay's blood sugar is a little high so she is on a small amount of insulin. Pray that they can regulate it.

2. She has developed some air around the left lung and they are trying to take care of that this morning.

3. She needed platelets last night and there didn't seem to be a change. However the her friend in the next cubicle had them also and there wasn't a change. They are checking that out this morning as well.

4. Please pray that the Berlin heart will arrive this week. Here is a clip about the heart. http://www.allkids.org/body.cfm?id=396&action=detail&ref=57

5. Pray that God will miraculously provide Lindsay's new heart either by healing the "old" one or through the transplant.



While we are encouraging folks to visit Laura, Jon, and Tanner, it is important that you be well. Lindsay is very susceptible to infection.

Sunday Evening Update

Here is the update for Sunday evening:

Praise the Lord that Lindsay has responded by eliminating fluids to the pleasure of the the nurses.

The transplant team thinks that the Berlin Heart may arrive on Tuesday or Wednesday.

Laura and Jon have requested prayer for the two young boys on either side of Lindsay. 7 year old Lance is in very serious condition and needs a heart and lung transplant. They have been testing him throughout the day and he has little or no brain activity, which would disqualify him for the transplants. Please pray for Lance's family.

Pray for 10 month old, Logan, who has had three open heart surgeries. He is doing quite well. Pray that Laura and Jon can be an encouragement to this family.

Pray for Grandma Groen (Phyllis) who is not feeling well and had to stay home today.

We covet your on-going prayers and encouragement!

Sunday afternoon updates

Praise the Lord for several churches that shared about Lindsay and mobilized people to pray. We appreciate that.

They changed the tube today to the heart and lung machine to give better flow. The main prayer request for today is that they would be able to get rid of the excess fluid she is retaining. Jan said her face was puffy today.

Thanks for praying and partnering.

Sunday Morning Update

There really is nothing new to report this morning, but I was impressed to write the words of this old hymn for Jon and Laura this morning (yes, your father is getting old!) ...

Day by day and with each passing moment,
Strength I find to meet my trials here;
Trusting in my Father's wise bestowment,
I've no cause for worry or for FEAR.
He whose heart is kind beyond all measure
Gives unto each day what HE deems best
Lovingly, its part of pain and pleasure,
Mingling toil with peace and rest.

Every day the Lord HIMSELF is near me
With a special mercy for EACH hour.
All my cares He fain would bear, and cheer me,
He whose name is COUNSELOR and POWER!
The protection of His child and TREASURE (Lindsay Bear)
Is a charge that on HIMSELF He laid;
"As your days, your strength shall be in measure,"
This the pledge to me (Jon and Laura) HE made.

Help me then in every tribulation
So to trust YOUR promises, O Lord.
That I lose not faith's sweet consolation
Offered me within Your holy Word.
Help me, Lord, when toil and trouble meeting,
E'er to take, as from a father's hand,
One by one, the days, the moments fleeting,
Till I reach the promised land.

The verse under the title of the song is "My grace is sufficient for you; for MY strength is made perfect in your weakness." 2 Corinthians 12:9

That's my prayer today for Jon, Laura, Tanner, Warren, Phyllis and Jan as they stand watch at the hospital today.

As of this morning there were 500+ people who visited the blog yesterday! You have NO IDEA how humbling and encouraging that is. We love you all.

Saturday evening update

Laura and Jon met again with the transplant and were given much information to process. The paperwork has been filed to start the search process for a donor heart. Now we wait on God's perfect timing for this provision.

Jan's sister and brother drove to Boston today and their car broke down right off the Mass. Turnpike, and they had to be towed to the garage. They drove in from Lancaster, so needless to say that they were frustrated with the delay.

Jan checked in with them after lunch and Jeanne said that they knew why they broke down when and where they did. Jan assumed it was a mechanical issue that was revealed, however it was another "Wow-God" moments.

While waiting for their car to be fixed, a tow truck brought in another man's vehicle that had also broken down. They engaged in conversation and the man asked where they were from and why they were in Massachusetts. They shared that they were from Lancaster and here to visit their great niece who was facing a heart transplant. He asked what hospital and Lindsay's age.

Turns out this man is from New Hampshire, and has a three year old daughter who had a heart transplant at 22 months, and the surgery was done at Boston Children's Hospital. He told them how pleased they were with all that took place and that things were going to work out for Lindsay. Coincidence? I don't think so.

Pray now that God will provide the RIGHT heart as soon as possible.
Pray that the Lord will open some short-term housing that will be needed after Lindsay has recovered and can leave Children's but cannot travel far.
Pray for on-going peace for Laura and Jon.

Thanks again for praying. We are humbled and amazed at how many people have visited the blog today!!! We love you.

We remain IN HIS GRIP!

Saturday afternoon Update

The family is meeting now with the transplant team. Lindsay's request has officially been posted.

Will update as I get more information.

Friday Evening Update

There is much to tell you tonight, but I will try my best to keep it short, as well as explain it to the best of my ability.

The heart cath revealed that there is major damage to the left side of the heart, which explains the pumping issues. In one sense it shows that this was more serious than we realized.

The plan is still to proceed with a heart transplant. They are ordering a "Berlin" heart from Germany which will be attached to her from the outside until her new heart is available. This will allow her to be out of bed and to do some regular things, but she will need to remain in ICU until after the transplant.

It could take from 24 hours to six months to find a heart, and obviously to get a heart means that someone else's child has to die. That is a hard thing to face.

So how can you pray?

1. For continued strength and peace for Laura and Jon, as well as Jan and the Groen's. We are in this for the long haul.
2. That they will know clearly how to provide Tanner some form of "normal" during the long haul.
3. That God will provide a healthy heart as soon as possible.
4. That God will keep Lindsay's lungs, kidneys and liver functions safe during the waiting period.
5. That Laura and Jon can be a testimony to the staff and other families.

Laura and Jon had several friends from MOPS today. They were so blessed with their visit!!! Please know that visitors are a good thing right now.

There have been some questions as to how to leave your name on your blog entry. To leave your name, type it in with your message in the blog dialog box.

We love you and thank you again for your prayers and encouragement.

Friday Afternoon Update

Lindsay's CT scan came back normal! The EEG came back normal. Her coloring is so much better today. The cath will be sometime between 3-4. They have also done three EKG's and they have all be good. The transplant team is meeting now.

I will let you all know about the results later on this afternoon.

Friday Morning Update

First of all, we want to thank you again for the many thousands of partners now circling the globe who are praying for our kids, and especially Lindsay Bear. What a privilege to be a part of God's family. It is amazing and humbling to have this outpouring of love and prayer support in the midst of this trial.

Lindsay had a peaceful night. They did not back down the heart and lung machine, but have opted to do a Ct scan of the brain and also another procedure that will check out the circulation, and get inside the heart to see what is actually going on.

God has been giving us HIS peace in indescribable ways -- "far and above our human comprehension and understanding."

Today I journaled on my daily Freedom Fighter blog what God has been teaching me. Check it out: http://www.americaskeswick.org/freedom/

I will update the blog as soon as I have information. Please know that the kids are know able to read your comments right away since someone provided a wireless card for them.

God bless you!

Thursday Evening Update

The team of doctors met with Laura and Jon tonight and prepared them that the next step is most likely going to be a heart transplant.

The decision will be made some time in the next 12-96 hours. The bottom left side of Lindsay's heart is not functioning properly and they are calling the episode on Tuesday cardiac arrest.

In one sense Lindsay may tell them what the next step will or will not be depending on how she responds. She is on a priority list for a heart which means it could be anywhere from 24 hours to six months. The family and team would be making the decision to proceed if this would be a viable outcome for Lindsay. This is a very difficult time for everyone. For the past 48 hours the verse that Lord has been giving me is from Psalm 61:2 "From the end of the earth I call to YOU when my heart is faint; lead me to the Rock that is higher than I.

Please pray specifically that the Lord will give all the family peace and a good night of rest tonight.

Pray for wisdom for the doctors and personnel that need to make the decisions.

I have been praying that if God would heal Lindsay to the amazement of the doctors, nurses and others who have attending her and observing this situation. Ultimately our pray is for GOD'S WILL for Lindsay Bear. She belongs to Him.

Your notes are an encouragement, so please ... keep 'em coming.

Thursday Update

I am sorry for the delay in getting you information on the blog, but I was hoping to have some more encouraging news for you.

Here is what we know at this point:

1. The left side of the heart is not functioning properly. They tried weaning her slightly off the heart and lung machine so that she would do more of the work and she wasn't ready for that.

2. They still have her in the "paralytic" state and want to keep her resting. They are turning her, and she has opened her eyes.

3. The EEG studies will be done later this afternoon which will show if there is any brain concerns or if a seizure might have been the cause of the attack she had on Tuesday.

4. The two options at this point unless God intervenes and heals her would be for additional open heart surgery or a heart transplant. They have not ruled out the heart transplant which was already an option if they did not do the surgery and allow things to run its course.

Obviously both options weigh heavy on every one's hearts and minds. So how can you pray:

1. Pray for continued wisdom for the doctors and nurses.

2. Pray that if she will need the transplant that God will provide a heart as quickly as possible. The nurses have indicated that paperwork might already be in process just in case.

3. Pray for peace for Laura and Jon. As each day drags on the waiting gets harder and every one's patience tends to wane.

4. Praise the Lord that the Devon House opened up for housing from Friday night until the 30th. That will take much pressure off everyone.

5. Praise the Lord for the thousands who are praying! It is amazing to hear reports of friends everywhere who are lifting the Groen and Welte families up before the throne of grace.

Again, please be sure and leave a comment on the blog even if it is just a sentence. It is an encouragement. We love you all.

If you'd like to send a card to Lindsay, you can send it to her c/o:
Boston Children's Hospital
300 Longwood Avenue
Boston, MA 02115

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:Dover Baptist Church151 Washington Street Dover, NH 03820 Attn. Pastor Ken Monihan. Please make checks payable to Dover Baptist Church and write Jon and Laura's name at the bottom of the check.

Wednesday Evening Update

This afternoon they began the neurological tests on Lindsay. She will be monitored for 24 hours to determine if there was any brain issues or if this episode was caused by a seizure.

Pray that everyone will get a good night's rest.

Laura wanted me to let you know that visiting hours are 12-8 Eight South. Thanks again for your prayers.

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:Dover Baptist Church151 Washington Street Dover, NH 03820 Attn. Pastor Ken Monihan

Tuesday Morning Update

Thanks for your prayers. I cannot express enough how much it means to know we have a family that now stretches around the globe of people who are praying.

Lindsay had a restful night. We are thankful that Heather was her nurse again in CICU. She is super.

The surgeon was pretty frank with Laura and Jon today and there are several things that they are facing at the moment.

> They did test on the liver and kidneys and they are functioning properly. All of her other blood work is good as well.

> They will be doing a neurological study to make sure that there is no problem with the brain.

> There is the possibility that she might even need additional heart surgery, and he even mentioned the possibility of a heart transplant. I think he is trying to explore all of the options with them.

> They are having to move one of the heart lines to the other leg because of possible circulation problems.

Obviously Laura and Jon have a lot on their plate right now. The plan today is that they will leave Lindsay rest and then do some additional testing tomorrow.

I know that as the family read the blogs they are an encouragement. The tears obviously come too! I will keep the blog updated as often as I receive information.

We are IN HIS GRIP!

If you would like to make a contribution to help with Jon and Laura's expenses, you can send a gift to:

Dover Baptist Church
151 Washington Street
Dover, NH 03820
Attn. Pastor Ken Monihan

Tuesday Evening Update

Lindsay is still be monitored very closely and being cared for by the amazing staff of Children's Hospital. Obviously she is in critical condition and we are having to take things moment by moment. Let me offer some specific ways for you to pray:

1. As you pray for Laura, please pray that she will be able to not dwell on the image of Lindsay collapsing in her arms. She told me earlier that she keeps rehashing that picture and beating herself up that she missed something. Pray that God will continue to sustain her as she still has not had time to even process all that has occured with her miscarriage.

2. Pray for Tanner and his adjustment to this situation. For a three year old, he has been a real trooper in being at the hospital nine days. The kids are trying to pray through how to bring some normalcy to his life at this point, and certainly they don't want him to think he is an intrusion.

3. Pray for Jon that God will give him strength. He has done so well in even sleeping in the room at nights. He hates hospitals as much as I do, so I know that this is majorly out of his comfort zone.

4. Pray for Jan, Phyllis and Warren. It is hard on grandparents!!! Pray for the Lord to sustain Jan as she is feeling emotionally spent right now but wants to be there for the kids.

Warren asked the doctors if this was a short-term set-back. The doctor said she could be looking at several days or maybe even a week on the heart and lung machine, and additional weeks in the hospital.

A number of folks have asked about financial concerns. We believe that they are going to be adequately covered, however, if Jon isn't able to work, he does not get compensated. Their church took an offering for them on the weekend which will be a big help.

Tomorrow I am planning to ask the Keswick Board if it would be possible to set up a fund so that folks can contribute through America's KESWICK. I will put the information on the blog some time tomorrow.

This morning in my Freedom Fighter blog I journaled from STREAMS IN THE DESERT on the topic of TRUST ... "The strength of our faith is in direct proportion to our level of belief that God will do exactly what HE has promised. Faith has nothing to do with feelings, impressions, outward appearances, nor the probability or improbability of an event. If we try to couple these things with faith, we are no longer resting on the Word of God, because faith is not dependent on them. Faith rests on the pure Word of God alone. And when we take Him at HIS Word, our hearts are at peace." The hymnwriter said, "Tis so sweet to trust in Jesus! Just to take HIM at HIS WORD. Just to rest upon HIS promise! Just to know, 'Thus saith the Lord!'"

We don't understand! We can't trace His plan. But WHAT we can do at this point, moment by moment, is to trust HIS heart.

Your prayers and notes mean more than you will EVER know. Please keep them coming.

We are IN HIS GRIP!

URGENT PRAYER REQUEST

Lindsay went into cardiac distress this afternoon and has been taken back to Cardiac ICU. They had to open up her chest and put her own the heart and lung machine. Obviously this has been a very traumatic couple of hours for Laura, Jon, Tanner and Jan. We don't have a clue what the next steps are at this point, but we do trust in our Sovereign God who knows what is happening. I will be keeping the block updated as I have information.

Tuesday Noon

Lindsay has turned the corner. The meds are working. She is off her oxygen and she made a trip by wagon down to the main lobby to see the fish and a huge ball display! Praise the Lord. Jan will be sending me pictures later.

Thought this would be an encouragement to all of our faithful praying family and friends.

Update Monday Evening

Lindsay had an ok day. She was fairly restless and seems to have had it with everything. The continue to regulate the heart meds and are praying that the diarrhea under control.

Laura and Jon want to thank Susie Randolph for the cookies she made for them and the nurses. The nurses really appreciated and enjoyed the cookies.

Pray too that Jan will be able to extend the housing until the weekend. They are running out of options.

Monday Morning Update

Lindsay continues to improve. The heart rhythm issue is being controlled by medication which they will increase slightly today. She is still battling diarrhea, so pray that they will be able to get that under control. Thankfully Lindsay is able to drink the unflavored "pedialite."

Keep the prayers and encouragement notes coming! We appreciate them.

Blog Information

Some folks are having difficulty using the blog. You need to post your comment, type in the "Word verification" and then click on the "Anonymous" button then PUBLISH POST. If you have a problem, please send an email to Bill at keswickexe@akmail.org.

Saturday Afternoon Update

Lindsay DID NOT go back to ICU last night. She is still struggling with a rapid heart rate. She seems to be improving, but is not showing much emotion. She is beginning to eat more and the kids were able to take her out of the room in a "wagon!"

Don't stop praying and keep the blog comments coming. They will be a big encouragement to Laura, Jon and Tanner.

Thanks.

Friday Evening Update

Earlier today Lindsay was moved to the Cardiac Step Down Wing. They have not been able to get the heart rate to the level they desire, so they are moving her back to ICU. As of 6:00 PM they were still waiting for bed.

They also attempted to put her on liquids and lite foods, but she has struggled with diarrhea all day. Pray that they will be able to get this under control.

Zach and me are back in Whiting, so we will be able to update the blog more often throughout the day.

Thanks for standing with us.

Thursday evening update

Well believe it or not it is 11:21 PM and I am on a date with Lindsay!
My family are still a bit in shock, but I am spending the night with her in ICU! Don't faint! I am in my right mind (well, I think I am ...) Today was an incredible day of progress. Tonight they took out the breathing tubes and she is just on a little oxygen. Because she is getting a little more active, they upgraded her to a big girl bed. By morning, she will be pretty much awake and able to start eating, which almost doesn't seem possible.

We cannot thank you enough for the prayer support and encouragement that you have provided. The blog comments are a great encouragement to our kids.

Zach and I will be heading back to NJ tomorrow with Josh, Jenny and Samuel. Jan will stay on to encourage the kids her and help in whatever way she can when Lindsay is released. God has been so good to us.

God is still working miracles!

Yesterday we were still trying to find housing for Laura, Jon, Tanner and Jan for this weekend and next week while Lindsay is still in the hospital. We had tried several places at the direction of the social worker. Jan had called Devon Nicole House where we had previously made application and they were still filled. She mentioned to the lady on the phone that it was a good thing that they were filled and helping so many people. The lady wished they had a bigger place so that they could help us. Later in the afternoon, Caroline, the social worker, found Jan and told her that Devon House had called her and told her that a local hotel within several blocks had offered a room for $30 a night from Friday to next Wednesday. When Jan went to finalize it with the Children's services department, the lady there said we were very lucky that it doesn't happen very often. Jan told the lady that it wasn't luck but that it was a miracle and that we had thousands of people praying. One of the ladies jumped and gave Jan a hug. She was a Christian and said that the other ladies needed to hear that. Praise the Lord, He is still working miracles. Your prayers are still working. :)

Update for April 10

Well, things have been happening quite fast around here so that is the reason for the relay in writing. Just as we were ready to update, something else would happen and change. So here we go.

They have removed both chest tubes, catheter is out and the neck pick line is out! The first to come out was the monitor line that was right at the heart. That was the toughest one but the Lord kept it easy with no bad results. They are lowering her bed to wake her up and Laura and Jon will get to hold her! We praise the Lord!

Julie is now on her way home (a little teary). Pray for safety as she drives back to New Jersey. Thanks again Garrett for letting her come. Thanks too, to Emma and Ethan for letting their mom come to see Lindsay. It was great to have all the Welte kids together. Josh, Jenny and Sam will be here until tomorrow. Pray for safety as they drive back to Maryland tomorrow.

We cannot thank you enough for your prayers and loving thoughts that have poured out over these last several days. God is so good.

Pray for Bill and Zach as they will also be leaving tomorrow to return to NJ. Jan will stay on for the duration of the hospital stay and then to NH to help with getting Lindsay back into the daily routine.

Update 4/9/08 10:00 PM

Praise the Lord for the great progress that Lindsay has made today. As of this evening she is completely off the pacemaker and the medications to regulate the heartbeat have been greatly reduced. She is out of the "paralytic" sleep and beginning to become a little more responsive.

The surgeon is pleased with what he observed as the day progressed. She will remain in Cardiac ICU for at least another two-three days.

Our daughter, Julie, arrived this morning. Thanks, Garrett, for letting her come and for taking care of the kids. Laura was really surprised to see her. Pray for Julie as she heads up some time tomorrow afternoon.

Amy Richardson, daughter of Karen and Robby Richardson, took Zach and Tanner out on the town this afternoon and they had a great time getting away from the hospital. Thanks, Amy!

Josh, Jenny and Sam arrived after 6 and really shocked Laura! They will be staying until Friday and Zach and Dad will follow them back home. Thanks, Josh and Jenny for making the trip.

Grandma (Phyllis) Groen is spending the night with Lindsay so that Laura and Jon can get a good night of rest (if that is possible with Julie and Laura being in the same room).

Your prayers and blog comments have been a HUGE BLESSING!

Update -- April 9, 2008 4:45 PM

Praise the Lord for major improvement this afternoon. Laura and Jon were able to assist the nurse in bathing Lindsay. She has been responding to the stimulation. Sometime in the next couple of hours they will reduce the meds which will mean she will be waking up slowly.

At this point they do not believe additional surgery is necessary. The leaking has been greatly reduced. She is still being assisted by the pacemaker and that should come off as she stabilizes.

Baring no complications, she will be in ICU for at least three more days and then will move to cardiac step down.

Another major answer to prayer is that Jon and Laura were able to secure a hotel room closeby for $30.00 a night. They have the room from Friday - Tuesday. The hospital social worker said this rate doesn't come about very often.

We cannot thank you enough for your prayers. We know people are praying round the clock from different locations around the world. It is very humbling.

Update -- April 9, 2008

Our families want you to know that we sense God’s peace in an amazing way even through the tears. They are doing an echo-cardio right now which will determine the next steps. Dr. Mayer is thinking that he may need to do surgery later on today. The good news is that her bp and heart rhythms appear to be stabilizing. We can sense the strain on both Jon and Laura at this point, so continue to undergird them with your prayers
We will keep you posted throughout the day. We love you all and thank you for standing with us at the throne of grace.

Tuesday Night Update

Lindsay had a rough time shortly after 5:00 PM. They had an issue with regulating the heart rhythms and blood pressure. They have changed the medications and will keep her on the pacemaker through the evening and then will make a determination in the morning as to the next steps.

As we said previously, the first 48 hours are the most difficult so we are praying that by tomorrow afternoon she will turn the corner.

Jan and I are very proud out Zach and how he was such a help. He made it back numerous times to spend time with Lindsay, and when the crisis hit, was helpful in relaying information to the family.

Jon and Laura are spending the night at the hospital tonight. The Lord is sustaining everyone.

Thank you again for your prayers. The blog comments are much appreciated.

Tuesday, April 8, 2008

We apologize for the delay in getting out information. It was a busy night. Granny stayed at the hospital with Lindsay while Laura went back to the hotel for some much needed sleep.

Lindsay had a few episodes last night where her heart rate went up and her blood pressure dropped. With that, many people descended on the room and were working to correct the situation. This is common in post-op heart patients but a little scary for Granny at first. Once she knew what was going on it was better. Lindsay has been put in a sleep mode and her body cooled so that the heart and everything related can begin to heal and get back to a normal rhythm. This will also keep her from moving around. Yesterday she became very agitated when she knew Laura and Jon and family were in the room. She wanted "uppy", "Mommy," "juice". They need for her to be still and thus the "sleep" mode. There are technical terms but we can't pronounce them nor spell them. :)

Today they told us would probably be the worst for us. They will need to flush her body of fluids as it is retaining them. We may see a difference in swelling. As of 1 pm today she will only be out of surgery, 24 hrs. The nurses have said that we need to be patient and after the 48 hr period, things will look very different. Lindsay does respond to Laura, Jon and Tanner's voices and touch, as well as the rest of the family. We will need to keep this to a minimal today.

Continue to pray for Lindsay and Laura, Jon and Tanner and the Groens and Weltes. We can feel your prayers at work. We love you all very much. Thank you for your loving comments. We have all felt encouraged, loved and prayed for by them.

Keswick staff, the waiting room boxes have been a big hit. The notes, cards and letters were of great encouragement to all. Thanks again. :)

Out of surgery

Lindsay is out of surgery and did very well. She is now in recovery and Laura, Jon and Tanner are back in the room with her.

The good news is that she did not have to have a valve replacement. They did find an extra valve muscle that they had not anticipated. There is still a little bit of a leakage, but they will keep a watch on it.

Pray for strength for Laura, Jon and Tanner. I know that they deeply appreciate your prayer support and notes of encouragement.

Duet. 31:8

Lindsay is now in surgery

Lindsay is now in suregery. We are claiming the promise of Duet. 31:8. We thank you for your prayers.